United Brachial Plexus Network

<t>Jennifer<br/> I hope that your surgery goes well - I will be thinking of you over here in the UK.<br/> You will be added to my prayer list.<br/> I do know that if love and support can help to cure you, you are in VERY safe hands here in the BPI community - there are hundreds of people here who ca...

<r>Hi Stargazer- I repled to you on the other board- but in case you didn't see it<br/> I am Karen and I am the Chair of the Uk Erb's Palsy group - if you want to e mail me at; <EMAIL email="info@erbspalsygroup.com">info@erbspalsygroup.com</EMAIL><br/> then I will be happy to try and help you<br/> l...

<r>Hi Stargazer<br/> as jenny said, I am in the Uk and we have quite a large support group with lots of adult members - if you want to e mail me your contact info, I will be happy to send you some of our information and see if we can help;<br/> please e mail me at; <EMAIL email="info@erbspalsygroup....

<r>Hi Kath<br/> I still lurk - but I have to say we have been very busy in our group in the Uk and with so few management committee members the work seems to take forever to get done!<br/> Really the study just conculeded that more studies ened to be done in the long term on the adult obpi person - ...

<t>Hi<br/> I am very interested in this thread and would like to let everyone here posting that our Erb's Palsy group in the Uk facilitated a research study last year into the long term effects of this injury on the body.<br/> All the participants had an obstetric injury and completed a questionnair...

<r>Emma<br/> please feel free to e mail me any questions you might have to <EMAIL email="info@erbspalsygroup.com">info@erbspalsygroup.com</EMAIL><br/> I will be happy to share my experiences of my sons surgery with you and also to put you in touch with some families I know of in Australia if you wis...

<r>Iris<br/> here in the UK children are scheduled for a nerve graft surgery (as it is called over here)if it is indicated, between 4-6 months if possible.<br/> Very few surgeries are carried out after about 9-10 months as the surgeons over here consider that they are not as effective when the child...

<t>Marlyn<br/> I am sorry to hear about the loss of your friend, I have lost two very good friends to Breast cancer in the past year and it certainly helps to give you a perspective on what is important in life doesn't it?<br/> I live in the Uk -so I have no agenda where specific doctors are concern...

sending you all our good wishes and prayers that you all keep safe during this terrible storm.
Karen Uk

<t>Joanie<br/> thanks for your input - it's nice to hear your point of view.<br/> My son 13 years robpi - also feels some sensations in his affected arm - but not all of the arm, only certain areas . It is one of the curiosities of this injury and of course, the surgeons themselves are only speculat...