United Brachial Plexus Network

Lily has seen the Chiro twice now. My wife said the Doctor is very gentle and Lily seems to like him. Yesterday evening I was watching her walk around by our driveway. I swear I can already see improvement in her balance. She was walking over little hills and bumps with now problem. She did fall onc...

HI everyone, it's been awhile since i've last visited. I hope everyone is well. We are moving in a new direction with our daughter's (18month robpi) recovery. Chiropractic, the Dr wants to do routine adjustments, like three times a week. He has never worked on a bpi injury, but his enthusiasm is gre...

Hi Dawn and Nicole, It's been awhile since I visited the site. Glad to hear both of you are doing well!! Thanks for all the support/advice during Lily's first months. Take care.

Hi everyone, I just wanted to share some OT tips that I use with my daughter. Maybe others can share some of their tips. During meal times Lily (1 year old) naturally wants to use her non BPI arm for finger foods. Over the last couple months I have been encouraging her to use her BPI arm. At first s...

Hi Greg and Sarah,
Good luck with the surgery in September. My prayers are with your family

The Mayo visit was very uneventfull, the doc said "it's to early". So we wait... On a good note they are very confident we will see improvement ,they did'nt bat an eyelash when talking about it. They speak so confidently about her recovery.

Some good news folks. My wife informed me Lily had some signficant movements recently. Unfortunately I am out of town and did not witness them. She said lily lifted her arm while sitting on the high chair she lifted up off the tray and onto her sippy cup!!! She also said she moved at the elbow, I am...

Thank you all, We are seeing improvements, just not as much as we hoped. Just the other day Lily used her right BPI hand/arm to move a toy, her grip is getting better, she can grasp toys with more strentgh then a month ago. She is also starting to supinate and have better wrist control, so actually ...

Our little Lily is 3 1/2 months post primary surgery and we are not seeing much improvement. She is improving, kinda, she is regaining the movement she had before the surgery. How long did you wait to see results of a primary? She had two nerve transfers, oberlin procedure and should nerve transfer....

My wife and I decided that it would be best if she stayed home with Lily. We would have done this either way. I don't miss the money (that much) that she brought in. We seem to be the minority these days, its seems there is more of a focus on money then family. I dont want to offend anyone, and I kn...