United Brachial Plexus Network

<t>I'm Kathy and my pain is definately easier to take with time. Mine has been 7 1/2 years. I've been on 3600 mg of Neurotin - felt a little crazy though. Then tried Topomax for a couple of years. Decided to come off meds this spring and see what happens. So far doing good.<br/> At first, after the ...

<t>First let me apologize for rude "2nd" comment on here, and thank you for welcoming me.<br/> <br/> I went to the doctor yesterday and got the results of the MRI and EMG. Good news, no nerve damage (in the unaffected arm); however I have developed a volar ganglion cyst on my wrist and I have a lot ...

In 7 years, this is the third time I have tried to be a part of this group. I ask legitimate questions and there is never a response. This is a very closed group. Why can't new people join in?

Kat

<t>My TBPI was around seven years ago. I fell on ice and had a dislocation/fracture of humerus. The dislocation was disdiagnosed for 24 hours and it pressed on the brachial plexus to cause a severe injury. Totally flaccid arm for around a year. I've had 3 tendon transfers and 1 shoulder surgery. I s...