United Brachial Plexus Network

<r>Hi all! How's everyone doing? Let me do a quick intro first, for those who don't know Ben or myself. <br/> I'm Anne, mom to Ben (ROBPI) 7. Ben's had the nerve transfer, mod quad, gracilis transfer, and anterior caps release. I am a part time college student, work almost full time in the domestic ...

<r>Hi all <E>:)</E><br/> Well, Ben was evaluated Tuesday morning by the OT in Toledo and she said she didn't see him as having SID or ADD/ADHD (not that she was testing him for that, just a side note, lol). She said that his problems at school were probably more related to boredom (told the teacher ...

<r>Ok, let's see if I can reply to everyone, lol.<br/> <br/> parent needing help- I'll talk to Allison about the brushing when we go June 6th for his next checkup. We notice the sunburn thing on the right side, I've never noticed swelling, but then he's always a little more swollen in his right arm....

<r>Ben has a moderate-severe injury and Horner's. We noticed it right away and have noticed other little changes. Like others the fact it's smaller is more apparent when he's tired or sick, but it also shows up in pictures. Then a year ago, we noticed that his right eye is still blue and his left ey...

Hi Cindy, long time no talk, lol. I'm glad to hear everything went well with Matthew What did he have done? Email me bpimom@earthlink.net and we can catch up!

Anne

<r>We just had this same problem with Ben. We decided to get him his own bike (not a hand me down) for his birthday and none of the bikes they sold in the stores worked. He has the same floppy wrist and hand problems, plus he has a permanent contracture from the gracilis transfer, so to even reach t...

<r>Hi folks, looks like it's time for an update. It's just been hard to get in like I want anymore. Heck, between work, school, kids, and hubby, it's hard to get to the bathroom anymore, lol. Let me intro myself real quick for all the new folks. I'm Anne, married mom of two in Ohio. Bobby is my olde...

<r>Howdy howdy! I know I haven't been here in forever it seems, lol. Sorry, but so much of my time is eaten up with school and life, I just don't have the energy. Ben is doing great,he's 5 now and he had caps done (anterior if I remember correctly and you can't count on my memory any longer, lol) in...

<t>Kate, when we went to TCH for Ben's first two surgeries, we stayed a day or two longer, just in case. With him going to Cincinnati now, we leave as soon as he's out of the hospital since we only live 3 hours away.<br/> <br/> Sometimes the extra night is good just for rest's sake. It's extremely e...

<t>Lol, I live in a small town in Ohio, but those fellers are out of Toledo, and they are just generally nice guys. One of them and I spent a long time talking about our kids (kinda sad, huh? LOL) On the 25th there are some coming from Canada as kind of a last blast thing since the restaraunt (sp?) ...