United Brachial Plexus Network

Please wish Tess Gavagan (15 y/o) good luck tomorrow from all over the U.S. (or world). She is meeting with Senator Mikulski and Senator Dole is her sponsor - asking to be included in the 2010 Senate Appropriations Bill. She is asking that brachial plexus research be federally funded. This includes ...

<t>Good morning Beth,<br/> <br/> Congrats on your not so new baby girl. Mine is now 13 y/o and it sometimes seems like yest. that she was going through all of that. She was 16 wks when she had her first of 5 surgeries. One of the best pieces of advice I can give you is that this injury is full of di...

<t>Thanks everyone for the advice. Tess was diagnosed with Mono this week and they think that triggered it. She says it feels like lightning shocks. She has actually bruised it from pinching/hitting and twisting it so much today. She tried ice and heat. She finally is responding to the high dose of ...

<t>My daughter Tess is 13 y/o and is having an episode of severe nerve arm pain in her ROPI elbow. She has had this in the past a couple of times a year and iv morphine always works but this time is hasn't. Of course, they have sent us home b/c they don't know what else to do. Tess had five surgerie...

Hi Lisa and Dr. Shenaq,

Great news and we miss you!

Sharon and Tess

<t>Thanks Louise,<br/> <br/> I'm just looking forward to getting there and once she goes down that hallway and waves goodbye, I actually feel better after that goodbye. I think that's the part I hate the most because you want to cry but you can't or they will. I'm sure she will do fine but I always ...

<t>Hi, <br/> <br/> Tess says thanks to everyone for the well wishes. She is a little nervous and is going to try her hardest to talk Dr. Nath into skipping the statue of liberty splint. She doesn't mind the extension cast but hates the other one! The kids in her 4th grade class today had a q&a s...

<t>Hi Kimberly,<br/> <br/> She is having shoulder and elbow work. We will know more about what he is going to do once he can look around in there. It's been 3 years since her last one.<br/> <br/> It would be great to see you so come find us in the hospital. We should be there early.<br/> <br/> Sharo...

Hi my 9 y/o daughter Tess will be having her 5th surgery at TCH next Monday, Sept. 29th. If anyone is going to be there that week let me know. We will be there until Wednesday and she gets bored by Monday night!

Thanks,
Sharon

<t>My daughter is 9 y/o and I learned from Dr. Belzberg's presentation that the sural nerve graft is really just an empty tube. The nerves inside die so they aren't really doing anything with the leg nerves but just the tube. He said it acts like a straw so the bpi nerves grow through it. Can't beli...