United Brachial Plexus Network

<t>There is an excellent OT/PT program at Boston Childrens but its 1 hr away on a good day. Maybe I could take her every couple months like some one mentioned to be "evaluated". She was doing some pool therapy about 3-4 days a week over the summer but now i guess i just don't know what to do next. T...

<t>I was really pleased to see that we weren't the only couple with a bpi child to have increased marital stress!! Between the surgeries & being used to two incomes then to lose one income to be home to take care of your child post surgery...the financial problems begin to escalate. You have a c...

<t>I'm so full of questions this week. Any of you do therapy at home with your children? We do not have ANY therapists OT/PT in our area that have experience working with children with BPIS. We have easter seals but ofcourse Ashley doesn't qualify for that program anymore after 3 yrs old. I've met s...

<t>Our Surgeon & therapist recommended E-Stim for Ashley I'm just at the moment looking into the more updated version to give her more control over it. The one we have is outdated (& thankfully given to us by a little boy who didn't need it anymore) & she hates the fact that if the knob ...

I meant to say slightest movement of the "knob".

<t>Thanks Jo for your response. She's had three surgeries to date & does fairly well. The only problem right now is her hand is still pretty weak but otherwise she incorporates the arm into everything!!! I'm so glad about that too. We have e-stim but its a pretty sensitive machine & the slig...

<t>Hi Everyone!! I'm wondering if any of you have advice to offer regarding whether or not theres anything you can do to try & keep the BPI arm somewhat caught up with the other arm? It seems that its becoming an increasingly frustrating issue for my 6 year old cause more than anything at this a...

<t>We Sued also. Our daughter Ashley is 6 yrs old. We went to trial finally of March 04. She has had 3 major surgeries including the donor nerve graft. The jury awarded ashley a substantial amount of money & also a small amount for emotional distress for myself & my husband & the defense...

<t>Thanks John! We would have loved to settle, going through this has been the most difficult thing our family & my marriage has endured. Our one & only offer of settlement was so bad that it was almost like they were saying we want to go to trial. If we even had an offer of Ashley's care pl...

<r>Krista, Ella is a doll! She looked so unhappy in the hospital just like my Ashley. I hated that part the most all three times. As soon as i got her home she was happy as a clam <E>:o</E>) Ella looked like she was happy as soon as she got home as well. Bless their little hearts, everything they ha...