United Brachial Plexus Network

I am bumping this post up. I know from having coordinated and run the West Coast Erb's Palsy Support Group many many years ago that there are familes here in BC still, and I would really love to re-connect with you. My child isn't a baby anymore-she is 15 yrs old, and though I have no interest or ti...

Thank you both for your thoughtfylul replies.

I appreciate ALL the information. And Dani will too.


Hugs

Kim

Thanks Jmar, got it

That is FANTASTIC. Thank you for sharing.

Hope & Brittwitt, Your messages BOTH brought tears to my eyes. First because you both really connected to what I was asking, and due to your age, would be very relatable for Dani to hear. She is coming to terms with the scope of this injury.....at 15. I will pass along this whole thread and have...

I tried to search for the article 'Comfortable in their own skin" and can't find it.
Is there somewhere I am not seeing it?

Thank you!

Kim

Tom, Thank you for your reply. Wow, a semi truck driver...good on you. It sounds like nothing slowed you down, despite having a BPI. Dani has been much the same way, until now. And like you did, wants to work through it. I was referred to a hand/arm therapist, and hopefully he can shed some light on...

Carolyn,

THANK YOU!!
I will do that, and hopefully can provide the therapist and Dani with some good information.

I appreciate your response very much.

Take care,

Kim

Hi all! It's been a long time for me to be on the boards. Once upon a time, when Dani was a baby, there was no support to be found in Western Canada. I organized a support group, and was actively doing outreach work when requested to help new familes. (West Coast Erb's Palsy Support Group). After so...

Hi all! It's been a long time for me to be on the boards. Once upon a time, when Dani was a baby, there was no support to be found in Western Canada. I organized a support group, and was actively doing outreach work when requested to help new familes. (West Coast Erb's Palsy Support Group). After so...