United Brachial Plexus Network

What a wonderful day for all the kids and parents! Claudia and her family really out did themselves! Thanks for all the long hours you put in to make it such a wonderful day!
Kathy Reilly

Just an update - the editor of Child magazine responded to my email and would like to print my reply to her (basically thanking her for mentioning BPI and TCH)and I have asked her to consider researching more about BPI. It's a start!
Kathy Reilly

Francine,
Thank you for all your help in posting the registration form and information for the NY Picnic. Claudia and I appreciate your computer expertise.
Kathy Reilly

<t>Christine,<br/> Our daughter Caroline, 6 1/2, just took her split off 3/8/02 (she has been in the dynamic splint - pronator teres surgery and caps surgery) and we went to the pool at the college I work in and had the whole weekend before going back to school! She was so excited to see she could s...

I have been speaking to Lisa Thompson and they haven't decided if they are coming yet - waiting on a few things to iron out and then they will pick a date. It most likely will not be in Long Island if they come, but closer to NYC.
Kathy Reilly

<t>Hi - I understand your frustration - and I am so glad your daughter had a great day! As for the school system, I have found that you really need to educate them. Our daughter is in her last week with the 24/7 in the dynamic brace for the caps and pronator tendon transfer and she is in 1st grade. ...

Thanks Joann! Keep us posted on Joey's progress!
Kathy

<t>Alice,<br/> It's me Kathy - I will email you what I have found out for our county in NY (since we are close by to each other). Josh will be in Kindergarten next year right? Parent Advocates are assigned to families to help protect your childs rights (or to explain things to you) some are great an...

<t>Joann,<br/> Good for Joey and the rest of your family. We have 3 weeks down and 5 to go. Caroline is adjusting well. Did Joey wear the Dynamic Splint too or the regular one? I know from the last three surgeries her arm went down within the first few hours that we took the splint off - did Joey's ...

<t>Depending on how old your child is, they have different material you can ask for. For IEP for K - and up, our daugthers school district has a parents guide of rights. The hard thing we are dealing with is the 503 issue and is it a medical or educational issue. Everytime we have a formal meeting a...