United Brachial Plexus Network

email me
crestmom7411@yahoo.com
Kelly

Sorry forgot, my email is crestmom7411@yahoo.com

My son Matt was 5 months old. Feel free to email me with any questions you have. I would be happy to help in any way.
Kelly

<t>My son had a partial Mod Quad. His Latimus Dorsi and Pectorallis were partial released. He had this done at the same time he had the capsolodesis, and acromioplasty done. He was unable to put his arm behind his back before surgery and cannot still do this. I truelly believe that every child is di...

<t>I understand you saying you would rather see the positives. I am with you there 100%. It is great to find humor and joy from the things that hurt us. But to me it was like making fun of your childs injury. I'm sure that was not your intent. This injury affects not only our children but us, and we...

<t>Lizzy, I hear exactly what you are saying. I am at a point in my son's life that his injury doesn't consume me. His progress is at 85 to 90%. I can understand having a sense of humour about your own injury. I can understand a parent being confortable enough about their childs injury that they fee...

<t>I feel that the "peer review" post that should be deleted or otherwise worded as to not attack doctors or institutions, since it is in your policy that that is not allowed. I find it upsetting that post by certain people are allowed, but when we as parents try to defend our doctors or institution...

<t>Cindy,<br/> I don't have a problem with you, or what doctor you use. I just don't agree with you bashing other doctors. That is what bothers me and I'm sure others. I'm glad Kozin is helping your child, that is what we as parents do, find the doctor that is best for our child. Each family is diff...

<t>As far as therapy going, I don't believe that has anything to do with who the doctor is. My son had primary surgery and less then a year later he didn't need therapy of any kind. My son was able to crawl at 8 months old with no support. He didn't need therapy for a year and a half, until he had h...

<t>I'm sorry about what you are going through. I know how hard it is. My son has had two surgeries, both at TCH. I live in South Jersey and won't go anywhere else. I chose Texas because of the experience there and also because I didn't know much at the time about my son's injury. Don't get me wrong ...