United Brachial Plexus Network

Thank you!

We are in Newfoundland. My daughter is 14. Feel free to message me!

Couple of questions about camp.

We would love to come this year. My daughter is 14. Are there usually many her age there?

Do you know the date yet?

We would be flying from Newfoundland, Canada. Is there any financial support available? Flights alone for our family of 4 would be ~ $3000+

Perfect. thanks! I was using the link in the PDF and it wasnt working for me.

Are the bands still available?

We have the cruiser handlebars for our daughter's bike. This has helped her a fair bit.

<t>In the last 6 months or so my 9 year old DD has been complaining of pain in her affected arm for the first time. Sometimes she says it is like pins and needles. Other times she complains it is a shooting pain. Any suggestions of what is happening and what we can do?<br/> <br/> Thanks!<br/> Charma...

Anyone know what my daughter can use to keep a ruler in place. She has a ROBPI and this is an issue we just encountered in Grade 3.

Thanks!
Charmaine

<t>My dd, Karrie (LOBPI), 8 years old, might be getting serial casting done again soon to try and straigten out her arm some as she is tight. The drs are really debating whether to do it or not. The last time she had it done in the past her arm rebounded very quickly. <br/> <br/> Her comfort positio...

<t>Thanks! We are in Newfoundland actually. <br/> <br/> She has damage to c7, c8 and t1 (c8 and T1 were completely avulsed). Basically she has Klumpke's vs. the textbook erb's palsy....she has limited dexterity in her hand/fingers, no triceps really. She usually has her arm tucked in in front of her...