United Brachial Plexus Network

Dan,

Thank you so much for this info. I will make every attempt to join you and this awesome association of golfers. I dont think i can do this year, but i will save vacation time and money for 2018. Who knows, maybe i can swing it this year. It certainly is exciting to know you all are out there.

Hi Dan, I play alot of golf. Right Arm dominate tbpi. No use at all. 11 yrs ago. But i found a glove i use to velcro around golf club for my affected arm and use to swing with both arms. I will post a link. It definetley helps with balance. I do not hit very far but still enjoy the game way to much ...

Been looking for 6 yrs. now. Nobody makes them. It is very frustrating. I as well turn the camera upside down to take pics, or use a tripod. I would like to find a good video cam to use, but can't seem to find any. I'm sure someone would custom make something to your specs. I haven't looked into tha...

I have gained alot of sensation through my arm and also my hand and fingers. I am 5+ yrs. post accident. I think its a good thing. I can move 3 fingers now (very little but i can move them) The winter cold isn't so good though. The circulation in my arm and hand is very poor and it gets extremely co...

I would be interested and would love to see some pics. Can you post them. I'm always searching for ways to be able to work out again. Thanx.

I actually play as much as i can. I am not as good as i used to be but i'm getting better. My wife found me a glove for my right hand. It velcros around the wrist and forearm and has a flap that pulls your fingers in to a grip position and the flap then goes to a ring on the velcroe part under the w...

Thanks jess and angela for the replies. I am probably gonna go through with it, but i might wait till next year. They said at this point (5 yrs. post acc.) it is not time sensitive. I have full confidence in the mayo team and as you said a little would mean alot, i think anyway. It would be great to...

First off i must say the Mayo Clinic is a pretty impressive place. I did all the testing and met with Dr. Bishop to discuss my options. He told me that they could do a muscle transfer (grascillas?) to get bicep function. I would not be a good canditate for any finger function because of how stiff my...

Finally made it to Rochester late last night. Bad day to fly. I'm staying at the kahler grand hotel.
6:00 A.M. need cofee and bagel or something, then its off to my appointments. I will update post on there evaluation.

I am seeing the triad of docs. That sounds great about getting together. Especially the cake part!