United Brachial Plexus Network

How often should a person with a BPI get an MRI? or other imaging. Should there be routine follow up or only when there is a complaint or concern? Thanks- Marlyn Javier (Jojo) ROBPI He has not had formal therapy or specialist appointment in 2+ years. He plays first baseman for baseball and plays foo...

I am stopping by to say hi and Happy New Year. Javier (Jojo) is great! ROBPI, 4th grade, TAG program, baseball season coming up. I have requested my days off for UBPN Camp!!!! Woooohoooo! We have been wanting to attend for years, but wanted to wait until Javier wanted to go. I can not wait to meet n...

OMG! This would be Javier's dream come true. Javier is 9 years old and in the 4th grade. He is also enrolled in classes for the talented and gifted. He has been holding a football in his left arm since he was 6 months old and playing little league football for 4 years.Javier has ROBPI with very litt...

Emily - just seeing this message. I sent you a pm.
My email is marlyncma@hotmail.com

Hi everyone! It has been a while. I hope you are all doing well. Javier is 8 (almost 9) and finishing up the 3rd grade. He still has no use in his right hand, but is able to use his arm as a helper or just does everything onehanded. He will be starting defense for his 4th full contact football seaso...

We recently moves to Zachary, Louisiana from Newport News, VA. Javier flew with my father because I thought an 8 hour flight would be much easier on him than a 20+ hour moving truck or car ride. If you have a BPI, what do you think? And why?


Thanks so much!
Marlyn- mom to Javier 8 ROBPI

I haven't been on in a while, and am only now reading the responses to my post. What I meant from my original post was boxing as exercise, not against an opponent. But anyway, Javier is now 8 years old. He is finishing up his 3rd season of baseball, he is starting first baseman, and will be starting...

My son, Javier is 8 and wears size 10/12. I order clothes from CW kids, Walmart.com and JCPenneys. No problem finding elastic waist pants, short, khakis, and jeans. He likes to dress nice, and does not like wearing sweats all the time.He has limited use of his right arm and no function of right wris...

Hi everyone! I haven't been on the boards in quite a while. We are moving to Louisiana in a few weeks. Is anyone on here in the Baton Rouge/ Zachary area? I need help finding a pediatrician and therapist for Javier (ROBPI) 8 years old. Any help would be greatly appreciated. I have check the medical ...

Wow! time does fly. Maia has been an inspiration to us for 8 years. Yes, 8!

-Marlyn