United Brachial Plexus Network

Check it everyday since I found it!

<t>Hi Jo,<br/> <br/> Thanks so much for sharing your situation with me! Please keep us posted as to how Nick is doing!! I'll add you guys to my prayer list for an excellent recovery. It helps to know that such a little one, as your Nick went through the surgery and it sounds like you don't regret ma...

<t>Hi Kath,<br/> <br/> If I may ask you...had you or your parents (when you were an infant) been offered surgical intervention, do you think you would have taken the offer or wish your parents had? I'm only asking because my 14 month old daughter has ROBPI and she is being offered surgical intervent...

<t>Wow! If I may...I'd like to share a few thoughts I've had after reading your post...I don't think you are alone in your thoughts regarding teaching our kids to live "one armed", however, what we as adults think we can deal with may not be what the child him/herself can deal with. The awkard stare...

<t>Dear Grandma,<br/> <br/> Well I took a lot of comfort in your post...thank you very much for sharing your information with my regarding your grandaughter. Gives me a lot to think about, but, that's good. I'm so glad to hear she had improvement with the mod quad!! That's encouraging. I have to say...

<t>Thank you for getting back to me re: my post. KDBug sounds wonderful and I wish nothing but the best for her and your entire family. Thanks for the adivce re: therapies: My daughter has been in therapy all her life; I started ROM at 9 days old and put her in physical and occupational therapies, e...

Hi,

Can you please send me more information on the BPI Gathering in AZ on Oct 22nd? Thank you very much!

e-mail: kbinder@prodigy.net

<t>Do you regret not having the surgery as an infant? Is there anything you cannot do that you wish you could and would have been able to do had you had surgical intervention? I'm asking because I have to make this decision for my 14 month old daughter, whether or not to proceed with surgical interv...

<t>Hi,<br/> <br/> I'm new here so forgive me if I'm in the wrong room. I am looking for any parents who's infant suffers from BPI or anyone else out there who has it and either had the surgery as an infant or didn't have the surgery and what you think today regarding your decision. My baby girl is 1...