United Brachial Plexus Network

<r>I haven't posted on here too much. My daughter Ava is now a little over 2 years and has had such great recovery on her own! I am so proud of her! Anyway I am now 9 months pregnant and am starting to get very paranoid! Of course I have switched Dr.'s and am very proactive in this pregnancy. We are...

<t>Hi Erin - I'm glad you found this board it has been a real life saver. I am Tara mom to Ava, who is 16 mos. with ROBPI. Like the others said the first few months are the hardest. Thoughts and questions run through your mind as well as your emotions going crazy!! We did look into legal action and ...

<t>I just had the same conversation with our OT. My daughter has had some recovery on her own but when she is just standing, her BPI arm sits in the crooked position. When I asked her OT about this she said when she gets older we would probably look into wrist weights. My daughter too is 16 months. ...

Amy - What a great idea!! As a fellow Minnesotan my family would be excited to have a BPI event here. Either St. Cloud or Duluth would be fine. If you need any help just let me know, I love planning parties!!
......Tara (mom to Ava ROBPI)

<t>I'm not sure if you are a cat lover but my daughter (6 mos) just loves our cat (Dante). I love dogs too but cats are much less work, plus you can leave them for a night or two without having to find someone to watch them. Our cat is a persian (all white and lots of hair)!! My daughter is always r...

<t>Congratulations on your new baby. I too am a new mother to a wonderful little girl (5 months ) with ROBPI. It is definately a roller coaster of emotions you feel after you are told the child you've been carrying for 9 months has just been injured due to a doctors mistake!! The first few months I ...

<t>Diane - My daughter (now 5 months) had an EMG at 2 1/2 months and 4 months. The first time they sedated her with Versat? which was given to her rectally and the 2nd time they gave her nitrous oxide (laughing gas). During the EMG the inserted small needles which sent electrodes to the nerves and r...

<t>I need advice!!! I work at our county Museum doing programs and events for kids. One of the things I do is host B-Day parties. On Wednesday I was unloading my car when a woman came up to me and started talking to me about having her daughters party here. She looked very familiar and then I realiz...

<t>This exact same thing happened last week. EI from our school district sent a PT out, and after her visit she said Ava wouldn't qualify because developmentally she is not behind. I told her that Ava's other abilities weren't in question but asked if BPI would or should be an automatic qualificatio...

<t>I love the name, Vance!!! If my daughter would have been a boy that was the name we picked out (hubby's middle name). Anyway we have not had to make the decision about surgery, yet. My daughter is only 4 months old and docs say it is a definate possibility down the road. My heart goes out to you ...