United Brachial Plexus Network

<r>I am an LOBPI - I had the Mod Quad through Dr. Nath at 38 yrs old, now 40 yrs old. I didn't even know what I had until 38 yrs old, just knew it was a birth injury.<br/> I know how it feels to be alone with this - I wish I had someone to chat with at 19 myself.<br/> Suzy <EMAIL email="sbadaracco@c...

<t>I have not heard of PNF either but agree that your own arm is actually the weight in motions you cannot do. I started using a 1# wt and when proficient in a movent that was controled I moved to a 3# wt and then a 5# wt. When I had accomplished this I moved to a new angle to increase the difficult...

Yes, I also had botox for my lats that were contracting in both directions. After the botox weared off they came back online normally and only contract appropriately now.

<t>I didn't move my arm for almost 6 months, granted this was 1966, 4 years before the ModQuad I believe was invented. My oldest sister was injured at the C& (elbow) and me at the C5 (deltoid). I don't know of any other family with 2 in the immediate family. same doctor of course.<br/> People to...

<r>Yes, I have hand function. I was only injured at the C5 which affected only the deltoid, nothing else, so I don't have the typical elbow contracture ect. I say only as if I am a lucky one, but to be honest none of us are lucky and this whole injury makes me so angry I cry when I think of "normal"...

<t>Yes, I do e-stim. I had the same problem with no response and my PT just said there are no neural pathways built because there never needed to be any so there is no brain connection to some of the muscles. So I built them with repetitive exercise. For example, I have a pulley system and I do thre...

<t>I had mod quad 2 years ago and had trouble going to 120*. I didn't have burning, I had numbing but know that burning is also a sign the plexus is being stretched. To solve this? I just went really slowly, like 5* if 10* was too much. But also, I came to find that the numbing was just part of my p...

<t>Don't mean to freak anyone out but I had this problem and saw Dr. Nath during a trip to Houston - another specialist he knew shot my pecs and lats (not traps) with botox to shut them up for 3 months. When they come back on line they act normally. The condition is called co-contracting when they r...

<t>I had mod quad 1/05 and yes I have built up my tricep so now it is identical in size to my other arm. I always had function in the tricep but now that the whole shoulder is freed up I could focus on training it properly. I am now focusing on holding my arm straight when overhead since it likes to...

<t>I had the surgery 1/05 with Dr. Nath. I remember I was trying not to freak out the day before the surgery - I was 38 and had traveled from Oregon to Houston alone to have it done. The day before the surgery was the first I had met Dr. Nath and he had this instant calming effect on me, so much so ...