United Brachial Plexus Network

I read it

<t>I haven't posted much lately, but could use a little help now. My daughter, Ginny, is 6 and has started asking questions about her LOBPI with all the "why's", "what if's" and "how comes". I found in the latest Outreach by Caroline Reilly, but I thought there were a few others. I was hoping to sho...

<t>My first child was a vaginal delivery with an epi, pitocin and vaccuum extractor because of high B/P (preg induced) and she was big. She has a LOBPI.<br/> <br/> My second DD was a c-section based on the complications with the first (different doctors in different states) and I am VERY glad. DD #2...

God bless you!! You are your sisters angel!! I pray for you to have the strength you need and the resources will come when least expected for you and your family. I also pray that your neices will be ok from this and back on the right path!!
((((((HUGS))))))
Emily

Susie-
I am so sorry you have had such a time with CCS. It is nice to know it isn't the same everywhere. Where in CA are you? It is very frustrating when the Doctors don't know what is going on!!

GAmom-
I lived for 5 years in Brunswick, GA. My DD Ginny (LOBPI) was born in Savannah. Where abouts are you located? You will be in my prayers!!

You are right. We only qualified for the MTU as well.

<t>My DD started an EI program in Georgia when she was 2 weeks old. At 18 months we moved to California. I didn't know about CCS but found SELPA (Sonoma County) which is an EI for birth to 3 yrs. They recommended CCS, but you have to go to their clinics. EI comes to your home for therapy. Ginny is n...

I have 2 girls Ginny (Virginia) 6 with LOBPI, and Becca (Rebecca) 2 1/2. Very busy these two are!!

Emily

No matter how little they are or how insignificant others think the milestones are, they always brought a tear of joy to my eyes. This is just so great!! Enjoy each step of the way!!
Emily