United Brachial Plexus Network

courtneys email is Wildncrazyney@aol.com

<t>I just had to jump in for a minute. My son who is 31 had a terrible car accident 9 years ago while away at college. Among other injuries he suffered nerve root avulsion and lost the use of his right arm/hand. He had to learn to do everything with his left hand which included writing. His handwrit...

<t>I have a question about methadone. My son who had avulsion 9 years ago, take neurotin and elevil at night. He has never tried methadone. Is that a narcotic? Do you get a druggy feeling while taking this? It was never suggested to him either. He is working and has been going on with his life. He a...

Do you think this could be done one day to someone that has had avulsion 9 years ago?

<t>I have a question to any of you that have had surgery, nerve grafts, muscle transfers or anything like this to do with surgery for BPI.<br/> I have talked to several and they have very bad wide scarring in the neck area.<br/> Does everyone get this? Why? Is it because of those that have scar tiss...

<t>I am a little fuzzy about the zonegran that you are taking. My son had a tbpi in 95. He takes neurotin for pain and elevil to help sleep at nt. This zonegran really interests me. Do you really think it works alot better than Neurotin for the pain? Do you feel a little like you are going around ti...

<t>My son had a severe bpi from an accident in 95. He is 31 now. He is also on neurotin and is reducing his amount gradually. He definitely believes that he is not himself on in and a little bit in a fog. I just read about that new medication called zonegran. It's suppose to help the pain much bette...

Does anyone know if there is a simular thing for TBPI?

<t>We also returned from the picnic. I am John's mother and we enjoyed meeting those that I have been talking to via email. Now I can put a face with a name. The visit with Dr. Nath was informative now we just have to digest it all, think about it and hopefully come to some kind of decision. I am le...

I never heard of this medication but am checking it out. Will let you know what I find out!