United Brachial Plexus Network

on my back. Then on my side and then switched back to the back at the end.
Angie

Thanks for the information. I did e-mail Dr. Waters and he replied right away. He wants to look at Kayla's CT Scan so I will be sending it.
Angie

Does anyone have Dr. Waters e-mail address? Kayla is having a lot of problems with the shoulder so I am trying to get another opinion. Also, any information on him would be great.
Angie

<t>I am not sure what all of it means. We will be seeing a new specialist very soon. I am actually waiting for a phone call today with her appointment. Her pedi. doctor is getting her in soon. He wants this person to see her before we go back to Houston on April 19th. I will let you know if I find o...

Kayla did have an MRI of the spine because she also has problems with the leg on the injured side. It did show spinal cord injury. I believe thinning of the spinal cord. At this point they are not sure what to do. She has alot of pain on the right side.
Angie

Just wondering if any one else will be there. Kayla has EMG and then clinic.
Angie

<t>Kayla has had 3 plications, I believe Karen mentioned this. We live in Texas. (The first one was done in Dallas and the last two in Houston.) That is pulling down the diaphragm so that the lung holds more air. Unfortunally, it has not helped Kayla at all and the diaphragm just keeps rising.<br/> ...

<t>Kayla's phrenic nerve was severed during the primary surgery, she was 8 mo. then, she is now 8 yrs. Her right lung doesn't work at all either nor will it ever. They did try to repair it using a nerve from the rib but it had already been several years, so that did not take. She was also on oxygen ...

My heart and prayers are with you and your family.
Angie

I will never foget Kayla was in alot of pain after one of her surgeries and Dr. Nath stayed with us most of the night. He didn't leave until she was ok. We love him.
Angie