United Brachial Plexus Network

Hi
I'm Andrea.I am married 34 yrs.Have 2 kids and 2 grandkids.Have ROBI,LOBI,worse in left.No Horners.Also have severe scoliosis,syrinx,chiari 1 and just had abulging disk removed at c4-c5.I'm now fused from c2-c5.c2-c3 fused on there own.

<t>I have a similar problem.My left lower arm and hand have some sensation but it does not feel hot.My hand always have burn marks.The worst is seeing a blister a few hours later.The upside is I can wash dishes in really hot water.lol <br/> Please be careful because not feeling hot,you may burn and ...

I asked my Dr.about botox.He said he would do it,but after it wore off,the muscle could be weaker than before.I chose not.That doesn't mean it's not right for you.That decision is up to you.Please do lots of research.I'll be praying.

<t>I would have liked more compassion and understanding.53 yrs ago not alot was known.mom took me to the best hospitals and I had 3 surgeries.She was told to treat me like a normal child.I wasn't and it showed.PE was torture but I to was forced to take it.Never passed and kids made fun of me.<br/> I...

<t>Do not give up.lawyers are always taking contingency cases.You can find one in the yellow pages or on t.v.It's hard but keep going.It's been a long time ago for me,but I think under the new guidelines,they have to use pain as a part of the disability not seperately.It may be a tough road but keep...

I'm so glad you are back.I may not always write,but I count on you for support and info.Thanks to everyone for all your hard work.God Bless1

<t>I to never knew what to say.I could hide it until my right arm was also diagnosed with bp.Going into detail may be hard.I say the samething as everyone who posted.It's a birth injury.You need to tell them you can't pick up soda or you can ask someone in the store to load the cases.I'm sure they w...

<t>That shoulder strap thing is annoying!After bone fusion,I dont have a left shoulder blade.can't wear tank tops.Whoever has seen Terms of Endearment when aurora fixes Emmas bra strap,that's my Mom.I'm 52 and she still fixes it!I to have to hook in the front.Do year straps then get stretched out?`M...

You were wonderful!!It put bp out there and helped people who thought they were alone.Thank you for your courage.

<t>I'm so glad you got the tag.I put it off for many years.What a difference it makes!As for your pain,I understand.Had a decompression done 4 yrs ago.I have a chiari1 along with erbs.Thank God I found a dr.who realized it was all connected.He told me All my disabilities stem from birth trauma.My ne...