United Brachial Plexus Network

Erdrix - Wish I'd been able to come up with that when I was a kid!

Already have! But I'm not too optomistic about anything being done for my shoulder. It has grown "deformed," so I kind of doubt much can be done.

Hi John and welcome to UBPN. It was unbelievable to me when I first got involved with the UBPN boards how much I felt like instant family with everyone else here! I know you will find the same! It sounds like we have very similar injuries. My greatest issue is my shoulder. I don't think mine is sign...

It was, without a doubt, one of the most incredible experiences of my life. Great to met Marieke, Mel, Judy, Jenn & Vik, Matt & Emily, David, Paul & Denise, Tracy, and all the other grown up kids. I also enjoyed meeting and getting to know the parents much more than I had anticipated. Th...

Camp was awesome. It was great to be able to just say "I have a left opbi" or "I have Erb's palsey" and have people know what I meant by that. No need to explain everything including the very basics of what the injury is, much less the implications of it. So many "normal&quo...

My husband and I will be coming to camp! Yea! I am really looking forward to it...being able to meet other adults who've live with this injury like I have (until I found UBPN, I felt very alone!)...being able to encourage the kids that they can do ANYTHING they set their minds to do.... But my husba...

I've tried the body pillows and ended up with back pain. I may have been wrapping myself around it too much though. I am starting a new job in a week - after being laid off from a job I held for 11 years and being unemployed for almost a full year! I doubt we could afford a sleep number bed for quit...

For some time, I've had issues finding a sleeping position that doesn't cause me problems. When I was younger, I never noticed it, but as I get older and have more issues, I find it is really starting to be bothersome. The main points: - If I sleep on my OPBI side, my arm won't lay flat against the ...

I don't remember ever having any twitching or anything like that before it became full-blown PAIN. (Maybe I just didn't know what it was until it was too late.) I always injured that arm anytime I fell - I couldn't "catch" myself with my left, so my right too the brunt of any fall. I usual...

<t>Sarah - <br/> <br/> Check with your chiro and see if he/she does A.R.T. - Active Release Therapy. It is similar to deep tissue massage, but they go deeper. My massage therapist recommended A.R.T. and I started seeing my chiro specifically for that for pain relief in my "good" shoulder. IT CHANGED...