United Brachial Plexus Network

<t>I live in Kansas and called my local paper about putting my letter in in the "letter to the editor" part, but it was too long. I explained about my daughter and BPI and they did a front page (huge) right up about it all. They also published our letter as "guest columnist". You wouldn't believe th...

<r>My daugher was just like yours. She got movement back at around 3 months of age and she went hand to mouth right before we left for TCH to have surgery (at 5 mo. old) and she did NOT have to have surgery once we got there. We did ROM exercises at every diaper change and it made the difference. Em...

<t>Francine:<br/> <br/> Being a teacher (a special education teacher)I know that a parent really has final say in anything about their child. Taking away recess has never been an option for a kid, unless they were harming other children. You have the final say and I think they are just worried about...

Ashley:

I just sent you my letter for Oprah, along with pictures of Shaylan. Please let me know when you receive it.

Thank you!
Shava Vohs

<t>Hi! I am from Louisburg, Kansas. I have been to Garden City many times. If you would like you can email me. I clicked on the link in the other post, but I can't figure out how to add my name. I thought I did, so if anyone knows-please help me out. <br/> <br/> Do you go to any support groups? I wo...

Talked to Lisa Davis 2 days ago, and Dr. Nath said Shaylan does not need surgery. He looked at her tape and said she looked great. Thank you for all of your help.

Shava

<t>My first child suffered a bpi at birth (thanks to a doctor who tried nothing else to get her out but pull). Obviously, for my second child I found a doctor who listened to my concerns and wanted to know every detail about my first child's birth. (He actually delievered my 25 year old sister)This ...

Ashley:

Thank you! We are from Kansas and Shaylan will be 4 years old in February. As it gets closer I will call, I am still waiting to hear from Dr. Nath again.

You are so kind,
Shava

Our daughter, Shaylan, is scheduled for the clinic at TCH on the 13th of Jan. and then surgery on the 15th with Dr. Shenaq? Is there anyone going to be there then? She will be having the bicep lengthning and the pec release.

Thanks,
Shava

HAPPY HOLIDAYS!!!

When is it and can anyone go? What is the cost. My daughter is scheduled for surgery Jan. 8th at TCH.
Thanks,
Shava