United Brachial Plexus Network, Inc.

I would like to clarify, also:

I think that The Brachial Plexus Palsy Foundation is WONDERFUL and I have no problem with them or anyone else posting their link/information on this forum. I, too, feel that the more help and support the community has, the better. I realize I should have worded my previous post better; the only problem I had was with the verbage for the guidelines for the support boards.

Peggy

I just wanted to post and say that I am happy to see a new site. Anything out there to help BPI families is a GREAT THING! I have sent in my request for membership and I have spoken to a caretaker yesterday. It was a very nice experience. I am anxious to participate in the new forum and I look forward to meeting many new people there. That's how I feel about it. I think it's great to spread the word about things such as this.

~Krista~

This is not meant to put down the site....however a question. Even if you give personal info etc, and a caregiver calls back to verify.....How can the other BPI site be sure it is not a doctor or lawyer or whatever they are trying to screen out, actually being accepted into the group? If they are using their non professional personal info????? Or maybe one of their professional employees signing in.

From the information and guidelines listed, it appears as though this is the same support group/message board that was previously hosted by the injurednewborn website. I used to belong to that board and it was a nice forum. I also noticed several links to that website from the new site, so I guess they chose to reopen the forum at this website and I'm looking forward to joining again.

All I can say is Welcome back Francine!

B.V., you are so nice! Thanks! I like reading your posts, too.

Lori, I am glad you said something about the less-frequent posters not getting their questions answered as readily. That really made me think.

One point I thought to mention along those lines is that sometimes new moms ask questions that we old-timers have answered many, many times online. Sometimes I don't answer questions that I COULD answer just because I don't want to seem like the Shell Answer(wo)Man all the time! Maybe it's just that we regulars are sitting back to let someone else answer the question - ? At any rate, I'm sure it's not an intentional slight, and I'm glad you raised the issue.

I really hope you'll keep posting!

Tina ... rock on. Great post.

Janet

If you like B.V.s posts then you must love intentions to argue. The only time she posts is when she wants to add her two cents. Out of her 71 posts I am certain that 61 are attacks that stay because she finds a way to sound nice. It's sad that people can post only when a thread like this has begun. Let's try to help people and post when they need you.

I agree with most posters here. I wanted to say that the only problem I see on this thread is a couple of people who rarely post when they are needed, but are now posting to let us know how they feel just because this is almost a debate. Please don't appreciate the posters when they only post every time a problem arises. Please appreciate the people who help you everyday and as much as they possibly can when you ask for their help.

I have sort-of an off topic question... Why do some people have a problem with giving out their phone number? I have caller-id and I don't answer a number I don't know and I have anonymous calls blocked. Besides that, before caller id, how did you deal with telemarketers? Just wondering...

Marlyn

P.S I haven't checked out the other site, but I LOVE UBPN and all that it has done for me and my family in the few short months that I have been coming here.

for me, it is because i have known people who gave someone their telephone number online and it came back to bite them in the butt. something happened between them and next thing you know her number was posted all over the net. Even though you "know" the person online..it is still online....

Just my opinion

Mandie