United Brachial Plexus Network, Inc. • How many kids have sensory issues - Page 3
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Re: How many kids have sensory issues

Posted: Mon Apr 21, 2014 1:39 pm
by Master DIVER TOM
Well I was born in the 50s with Erbs, Over my life time I have cut , burned, pulled, bruised , etc to my erbs side. I dont fell pain that much or that my arm was bleeding. Way harder as a child today with so many choses, I never had surgeries , but if I would of some how end up with some time of sensory issues to. The best thing for me to get over the emotions of erbs was try to find things to try to do one handed as a child or a adult. Trying to stay positive even if I fail by trying. One of my happiest time was when someone did not point out my erbs. I do not know if this help??

Tom

Re: How many kids have sensory issues

Posted: Tue Apr 22, 2014 8:35 pm
by Carolyn J
I LOVE this post!! It is timeless and extremely helpful to re-read.
Carolyn J
LOBPI/75++++

Re: How many kids have sensory issues

Posted: Mon Jun 16, 2014 9:18 pm
by JessicasMom
OMG, my 10 year old, Jessica, has what is considered to be a "mild" injury (no surgeries and very good function), but she has extreme sensory issues! She is SO particular about her clothing, fabric, seams, embellishments, embroidery, etc., and she has had this sensitivity for as long as I can remember. Plus if someone gently pokes her or touches the deltoid area of her affected arm she yells like she was punched!

Re: How many kids have sensory issues

Posted: Tue Jun 17, 2014 4:40 pm
by Carolyn J
Jessica,
I'll try to bump up a "partner" topic thread on Sensory Dysfunction. this is very helpful information.
Carolyn J
LOBPI/76

Re: How many kids have sensory issues

Posted: Sun Jun 22, 2014 11:04 pm
by hope16_05
JessicasMom wrote:OMG, my 10 year old, Jessica, has what is considered to be a "mild" injury (no surgeries and very good function), but she has extreme sensory issues! She is SO particular about her clothing, fabric, seams, embellishments, embroidery, etc., and she has had this sensitivity for as long as I can remember. Plus if someone gently pokes her or touches the deltoid area of her affected arm she yells like she was punched!
Michelle,
I know Jessica has had a great recovery but have you thought about seeking some OT to lessen the burden of the sensory issues Jessica is demonstrating? I am thinking a brushing program would likely help her a ton! But sensory integration therapy is all trial and error so an OT in your area might be a great resource. Being familiar with BPI would be a plus but not must for sensory integration therapy.
Let me know if you have any questions,
Amy J, 27 years old ROBPI from MN (peds OT)