United Brachial Plexus Network, Inc.

Hello Carolyn

I'm sorry, i should introduce my self and my sweet baby Omar.
My name is Noha ,i'm Egyptian live in Emirates and Omar 5 months old,he is my second baby the first baby is a boy also 3 years
omar will go for primary surgery with Dr.Alain Gilbert from France on 26/6 please pray for him i'cant imagin that day

he has a wonderful PT she is a philipinen girl knows a lot about BPI

There is no BPI specialist here (maybe i'm wrong),most of them Orthopedic or plastic surgen or nurlogist who care about BPI people.

Not all of people here have a medical insurance like USA most of them pay from thier pocket especialy for private hospital.

I think I'll create group and web page for BPI support soon with Arabic language to help people in Arabic countries because no BPI support group here

Good luck for all

Hello Noha,
It is good to meet you and know more about both you and Omar. There are families all over the world in UBPN's network. Please keep us informed of how Omar's surgery goes and of his progress after, OK?
Noha, children are very resilient...they take things in stride and bounce back/heal very well. My son had 14 surgeries before age 18(non-BPI), it was easiest when I took one day, one surgery at a time and focused on keeping him comfortable as possible that day. I didn't allow myself to think ahead, & there was much to do to keep me busy & I am sure you will be too.

You both are in my prayers,Noha.
Hugs to you all,
Carolyn J
Adult LOBPI

Jody slept on his left side- he is ROBPI. When he was a newborn, we placed him in a "cheese". I guess its called a baby sleep positioner. Once they are old enough to roll and lift their heads, I took the "cheese" away and laid them on their backs and they end up on their side anyway.

MArlyn

omars mom- i wanted to say hi and welcome. Good luck with surgery. prayer works. my son had primary at 10 months and it lasted 10 hours. I have never been as calm as I was that day. I prayed and gave it all to God.

Best to you and Omar,

Marlyn mom to Jody 2 ROBPI

p.s my brother is in Emirates until October. This is his 2nd tour over there

Thanks alot BIGJAVSMA
how is Jody now
i know from posts that he has a sever injury
how he is doing now after surgery?