United Brachial Plexus Network, Inc.

yes for real Kaolos. What more can you say for real about what? PAUL

My son Zac is a TBPI. He was 4-wheeling, swerved to avoid a van, and hit it with his shoulder. Were it not for his helmet he wouldn't be here today. This happened 10/20/02. Has anyone worked with Dr Gaebler, Dr. Grant, or Dr. Greyhack out of Children's Memorial in Chicago? We are playing the waiting game, and I'm a bit nervous because our window of surgery is closing. My son can use his wrist and hand (left), but cannot use his bicepts, deltoid. From what I have been reading, I should be thankful for that. He is currently using a TES for stimulation, and we pray that that will be sucessful. This is a really great site. Thanks!

Hi Sandy,
Zac's injury sounds very similiar to mine. I didn't get any recovery at 4 months out, so I opted for surgery. I received surgery at 6 months out. It is now 18 months out and I am seeing some recovery. I can lift my arm with my biceps now and my deltoid is flickering. I'm hoping it will be somewhat useable with continued therapy.
From what I've been told, if you don't see any recovery by 4 months, you are a candidate for surgery. Good luck!

Hi everyone! Right TBPI obtained when I was attacked by a mad bull elephant while rescuing a little orphan girl from a collapsed burning house that was being shelled by drug-crazed Angolan gun-runners. Not.
Blind Ford Escort driver drove into me bike.

Hi guest, thanks for making me laugh!!
You sound like a brit to me, please provide your email addy or mail me by clicking on my name, there's a tbpi meeting coming up later this year in the UK (possible entertainment proposed, Twister, pass the parcel, Rubiks cube....you get the picture) and i think you'll find some kindred spirits there :0)

Hi,

Gaz from Hertfordshire England. Right TBI 24 years

glad I made you larf. Well spotted... I am a Brit, and we met at Lizzy's. Looking forward to the next one. e-mail on it's way to you once I've finished printing it out, put it in an envelope, bought a stamp, and shoved it back into that little slot in the front of my computer. You know, the one next to the retractable coffee cup holder.

Ilsphid. East coast. Shy. And compared to a lot of the people here, I have a very mild BPI.

(I think. The doctors never tell ya enough. I have full motion, just a lot of pain and some stinging and numbness from a "brachial plexus lesion involving the posterior and medial cords of the plexus", as the doctors put it. Probably neurologic TOS is my guess, but I hurt myself - honest to god - laying on the couch watching Mulan. such is my luck.)

Hi, I am from Vineland, NJ and I have a R-TBPI due to an exercise machine collapse. I am not on here as much as last year due to my mother's illness, but i do visit from time to time. Rhoda

Hi Rhoda

Nice to see you on the board instead of in the e-mail.... LOL...

How are you doing.... hope much better....
Kath