Joshua results today

[Karen Hillyer]

Pauline
I e mailed you privately
I feel devastated
Karen

[Julie-work]

I'm so sorry. I hope you find some comfort in knowing that so many people are praying for Joshua and are here to support you in your time of need.

[admin]

Pauline, I'm so sorry things have taken this turn. I know your darling Josh will be in the thoughts and prayers of many people. You will, too! Nancy

[claudia]

Dear Pauline:

My heart is breaking for you.

Hug your beautiful child and know that we are all praying for you.

The Strobing Family
Claudia, Frank, Nicolette, Isabel, Andrew and Juliana

[Karrie in MD.]

Pauline,
I am so sorry to hear about this. My heart goes out to you and your family. Know that you are in our thoughts and prayers always.
Karrie

[rachelcasa]

Pauline, your family is in my thoughts and prayers. Keep positive and strong. *HUGS*

[Pauline]

You are all so wonderful, thankyou so much for all your kind words and support.

My angel skips and plays, but now I see he's standing in sinking sand, and I have to pretend everything is fine, when the outcome is inevitable.

To say I am terrified is an understatement; it's like watching your child drown slowly, and you have to smile so none of the kids can see the fear and devastation in your eyes. If they tasted it for just a second childhood would end.
Josh has a brother, 9, and sisters who are almost 8 (twins).

My heart breaks for Joshua, I am grieving his loss of future, it is almost like he has died already.

I am so sad for my kids, and the future they now face, to see their brother, who they dote on so, go through this. My eldest boy has always said that he was put on this earth to protect and care for Josh.

I am sad for my family, who have dealt with so much. My sister and father have multiple sclerosis, the same sister has had 12 months treatment for breast cancer. Her daughter has been diagnosed Turners syndrome, another genetic disorder. My father had a heart attack last year. My mother was recently diagnosed with diabetes.
But the Duchennes is by far the most devastating yet, my poor little happy angel.

And I am scared that I will not be strong enough to get through this. You know how they look at you and need you to make it better, they trust mum to put it right. I have no choice here, there is nothing I can do.

I feel a little selfish writing all this, it is making so many people sad. But to be honest I don't know who else to turn to, and nobody can give support like you guys.

And please do not feel bad for being sad about your own situations. BPI is terrible, this diagnosis will never detract from that, you are fully justified to feel low at times.
At least God has given me warning that he needs his angel back, at the moment it is hard to make the most of each day when I am so sad.

I want to stop time, keep him just as he is.

Please keep us in your prayers, it really does help.

I love you for your help.

God bless all of you tonight
Pauline

[jennyb]

Pauline, I'm so sorry to hear this. I can only speak for myself, but please don't worry about 'letting it all hang out' here, it's what this place is for. I can only imagine how devastated you and your family and you have already been brave beyond belief-I know you will help them all through this. It is a mothers blessing and her trial that she takes on her childrens pain for herself, it's why we are here but noone warns us how much it will hurt us and how strong we must be.
See you some time in chat maybe or mail me anytime at jennybradley@xtra.co.nz
Take care Jen NZ

[JessicasMom]

Pauline,

I can't express how terrible I feel for you. Your family has been through so much. I pray that God will send you a miracle. Josh and your family are in our prayers.

Michelle

[Angie-D]

My heart and prayers are with you and your family.
Angie