United Brachial Plexus Network, Inc.

Carolyn: I have also reached out and would love to participate! Hopefully Dr. can travel close to Philly!

,John! I hope you come to Camp 2012 next July too.
Carolyn J
LOBPI/73

Welcome John.
I also have Erb's palsy since birth...43 yrs.....
Hope Philly is a good common locale for Dr. E to come from Mayo.
I live in the greater Baltimore area and would happily travel to Philly over MN!

I find that my affected shoulder pulls forward and that I think this is from the relative "tightness" I have in my chest musculature relative to my back muscles. So the affected shoulder tends to roll forward...and hike up to my ear. I would imagine that a "smaller" appearing shoulder is due to muscle imbalance and not a bony issue.

I have found that modified yoga for the past 7+ years has helped me tremendously. I am unable to move my affected arm above my head but have been shown modifications and I know I am physically stronger and more flexible because of it. I also have to take special care no to hurt my neck as it likes to jump in and activate when my shoulder cannot.

One of my biggest frustrations in exploring how I feel about having BPI is that it is NOT immeditely visible to those in casual contact. It is a big part about how I think of myself and yet this is hidden from others unless I choose to share it with them. Adds to my sense of shame at times b/c I "forget" that they cannot see it and assume that they are "ignoring" it: an issue I had growing up.

Hope you are able to learn about this important part of yourself here.
Sara

hi my name is sabrina im new to this site and i came across your posting, im 21 and wanted to post almost the exact same thing that you have except that it is my right arm... i knew other people have Erb's Palsy but reading that someone else has almost the exact way of life just astounds me! its nice to meet you!! have a wonderful day

sabrina

Brand new to ubpn. I suffered from a motorcycle crash which left my left arm paralyzed.
I was 25 when it happened, that was two years ago. I was extremely interested when I found out about this site I hope to meet some new friends.

Welcome,Rico to our UBPN Family. We Care, we support and there is a load of acturate information. there is no such thing as a dumb question, only the one not asked. Everyone is welcome on all message Forum boards.
Carolyn J
LOBPI/74

Thank you for the welcome Carolyn. Im very excited about this site and trust me, I am not shy when it comes to asking questions as well as voicing my opinion. Your very kind for welcoming me

Keep coming back here,Rico. I am interested in your opinions.
Carolyn J
LOBPI/74