United Brachial Plexus Network, Inc.

HELLO PETER,
I'VE HAD MY INJURY FOR 9MONTHS NOW AND EVEN THOUGH I STILL HAVE PAIN,ABOUT 3 MONTHS AGO I DECIDED TO STOP TAKING ANY DOCTOR PRESCRIBED MEDS MAINLY BECAUSE OF WHAT THEY DO TO THE LIVER AND KIDNEYS.DEALING WITH THIS INJURY IS HARD ENOUGH AND TO THINK THAT THE MEDICATION THAT IS SUPPOSED TO HELP CAN CAUSE ME MORE DAMAGE IN THE FUTURE WAS ENOUGH TO MAKE ME STOP.IT'S NOT EASY THOUGH,EVEN AS I WRITE THIS POST I AM IN PAIN,THERE ARE SOME NATURAL PAIN KILLERS THAT DON'T HAVE THE SAME EFFECTS AS THE DRUGS FROM THE DOCTORS AND THEY DO WORK.TRY YOUR LOCAL HEALTH STORE OR A NATURAL HERB STORE,I'M IN CALIFORNIA SO WE HAVE ALOT OUT HERE.I UNDERSTAND HOW YOU FEEL,HAVING THIS INJURY CAN MAKE THE FUTURE LOOK PRETTY BLEEK,I WAS JUST GETTING TO A PLACE WHERE THINGS WERE LOOKING PRETTY GOOD FOR ME AND I HAD A LOT GOING.WELL GOOD LUCK WITH EVERYTHING.

THATS a BIG ONE Kind of hard to be DEPRESSED when your Fishing for SURE!! But I still get Anger when one gets AWAY

I also Thought you needed another My nick name is NEMO when I dive it just Happen after the movie came out ! SCUBA diving CAn be done one arm, If you love the water like me Try it ?? I am never depressed and I fill 0-Pain at 30 FT or DEEPER you are WHeight Less , Some time there or Sharks see more on NIGHT DIVES, What me Worry???

This sure is a Great SIGHT!!! So many ,Doing so much with there limitation and TRYING!!!!

There sure is a lot of Readers to that look at our POST, AWSOME!!!

TOM-

ArmStrong wrote:HELLO PETER,
I'VE HAD MY INJURY FOR 9MONTHS NOW AND EVEN THOUGH I STILL HAVE PAIN,ABOUT 3 MONTHS AGO I DECIDED TO STOP TAKING ANY DOCTOR PRESCRIBED MEDS MAINLY BECAUSE OF WHAT THEY DO TO THE LIVER AND KIDNEYS.DEALING WITH THIS INJURY IS HARD ENOUGH AND TO THINK THAT THE MEDICATION THAT IS SUPPOSED TO HELP CAN CAUSE ME MORE DAMAGE IN THE FUTURE WAS ENOUGH TO MAKE ME STOP.IT'S NOT EASY THOUGH,EVEN AS I WRITE THIS POST I AM IN PAIN,THERE ARE SOME NATURAL PAIN KILLERS THAT DON'T HAVE THE SAME EFFECTS AS THE DRUGS FROM THE DOCTORS AND THEY DO WORK.TRY YOUR LOCAL HEALTH STORE OR A NATURAL HERB STORE,I'M IN CALIFORNIA SO WE HAVE ALOT OUT HERE.I UNDERSTAND HOW YOU FEEL,HAVING THIS INJURY CAN MAKE THE FUTURE LOOK PRETTY BLEEK,I WAS JUST GETTING TO A PLACE WHERE THINGS WERE LOOKING PRETTY GOOD FOR ME AND I HAD A LOT GOING.WELL GOOD LUCK WITH EVERYTHING.

Thanks for the responses!
Yes, that's what I'm concerned about as well, I've managed to cut down approx.10% in the last week; if gradually reduce I may have a better chance of eliminating the pain meds.
I am taking 40mg t.i.d Oxycontin and 10 mg Oxycodone (Percoset) (previously t.i.d before I cut back) What are the long term risk of pain meds to liver and kidney? I already have lower testosterone and am taking supplements for that. I was not able to have relations (I sound like a old lady)
Also, thanks for the encouragement Diver Tom
PS Armstrong why are you yelling?? jk

I' ve been living with my injury since 1968. Depression comes with the territory. Dealing with pain is a never ending battle. What bothers me the most is that young people do not have health insurance. I didn't either when I had my injury. So I understand what it is like to
wonder how & what can you do.

Your husband needs some type of talk therapy to deal with the depression. He needs a way to control the pain he feels. Currently I'm taking a drug that helps depression, Cymbalta.
Cymbalta can also lessen pain. As a result I feel better and have less sever pain .

Bill

Long term affect ? Some Med make me tired You start taking med that help? but over time you increase what you take to help with the pain to get the same affect , When this happen to me I did not cut back I replace that med. I do get tested for liver damage with no affect over my life time If you start having problem with your or my liver then you will STOP that med and switch It just that easy, Please dont Worry So much, I tell my self that ALL the time to ? My emotional issue is not Depression it Anxiety over my life time I guess Trying has a Sided affect its Anxiety, I think ?? You know we all Fell like each others pain,ITS a real Thing. No matter how I worry thing just seem to work ouT over time Oh sure I all so go on Shark Feeding Dives , In Freeport and even thaw I am a Dare-Devil at heart it the only weapon I have against Anxiety, Go Figure You know I really do try my best to Inspirer You know , I speak from world and time, I will Tell all of you that All I can offer you is my Thoughts over time by experience , I am in AWWW over treatment out THere I tell you that in your life time you will find Fact and not just hope to find a treatment , It is a quest, I think So is the pain issue

Mr Positive
Tom

Heidi, I am on here for the same reasons. I had a two year old and 3 month onld when my husband has his accident. Please don't give up. I have been going strong since Sept. 30th, 2009. We had to get FL Medicaid to help with the expenses when he lost his employer benefits after the accident. Luckily, we have found Doctors here in Miami to help and his major surgeries are in St. Louis, MO with Dr. Thomas Tung who works in Susan MacKinnons office. THey are extemely highly regarded in their community. If you need any help or advice finding Dr. or help please feel free to contact me. I know he will want to amputate and get it over and done with but there are so many other options. Personally, we have been able to see, after lots of pain and hurt, that some positive has come out of this, we have learned to enjoy our children and spend more time with them and definately it has made our relationship stronger. Sometimes, you have to just set your mind and ignore when they get angry. When people try and baby my husband I tell them he has two arms, at first they thought I was mean, but over time he does mostly everything on his own, even change diapers, and giving him his independence was the best thing we did for him and our relationship. He does have two arms and hopefully they will both work soon.

Ok so my wife married me with my erbs 31 years ago, I have learn to use my erbs side as a tool to assist in what I do with my good arm, This really happens to learn to think one hand , But I did get my erbs at birth to, But adapting in life does take time : In my post here I talk from my experience and are facts to me over my life time Doctor put you in so much stress , I know my doctors over time raised my blood pressure or was that because I drove semis?? Here the facts , You write here some one will respond the best they can about your needs, FOR SURE?? Next treatment,a way to do something it all here-!! Fact: if you get treated for depression how do you know its not ANXiety your experience, Fill like your in a hurry, dont know what to do?? Trying to get information and direction to see a doctor and in so much Pain?? Is depression a Panic attack?? I think it a mental over load it Anxiety to me.

From Mr Positive Lets go back to the 50s my erbs Hey, Doc lets take my arm off my withered arm and its 4 ins sorter at 10 years You know a fact ,if I would of gotten my arm taken off and read latter here post about treatments and operations 2011, which I never had say ?? SCary HA IT would be like a twilight zone episode Fact my arm is still about 4 in sorter BUT The muscles I could build up did happen over time and my grasp did to by adapting or trying to overcome my limiations over time,My right became a small tree trunk to Fact , You are doing GREAT because you have the courage to TRY in a Marriage to Like all ways hoping what I say helps :roll

Tom