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Re: New member from UK
Posted: Sun Jun 07, 2009 10:42 am
by Carolyn J
You ARE welcome Chrissie...it's never too late...I was 66 when I found this web site and a name...I cried sooo much in relief I lived a life thinking I was the only one so I know how much our sharing means to you. Keep saving to come to Camp 2010...THAT is life-changing too. can't descibe it in words tho...
Carolyn J
Re: New member from UK
Posted: Sun Jul 05, 2009 6:58 pm
by Michelle_16
Hiya Chrissie
I am from the UK too! I live in Scotland but use this site for support rather than anything in the UK because they are more tailored for parents and young kids with erbs.
I know in scotland now they actually have a specialist Erbs team working from the Victoria infirmary which is pretty awesome.
Janny, I am also gutted about the camp! i was definately prepared to travel to meet some people with erbs 2! where in Scotland are you?
Michelle x
Re: New member from UK
Posted: Sun Jul 05, 2009 9:58 pm
by marieke
Michelle, it will be in October of 2010 (so far as we know) but do not know where yet...
Marieke 33, LOBPI
Re: New member from UK
Posted: Fri Jul 17, 2009 6:16 pm
by janny
Hi Michelle, sorry just seen this!!
Im just north of Aberdeen. Where are you?
Re: New member from UK
Posted: Fri Jul 17, 2009 7:40 pm
by Master DIVER TOM
Hi, well I was born with erbs, I am 56. You are doing a awsome job with the erbs issues. I did not like theropy ether as a child. My mom stop trying with my erbs when she first saw me climbing a tall tree at 9. I learned to adapt my way to my limiations like climbing a tree basicly 0ne arm. Its funny how things work out in life. By doing thing my way I end up with my erbs diving a semi for 20 yrs with out a ticket or accident and I am a Padi Master Diver and dove over 500 dives since 1981. I like warm water to at 60 ft looking at creatures.
Best Wishes and tryies,
Tom