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Re: Mayo Clinic on 12/16
Posted: Mon Dec 15, 2008 7:01 pm
by Carolyn J
WOW Kath from Illinios, That Penthouse was a Vacation in my book!
Hugs all around the Boards
Carolyn J
LOBPI adult/70
Re: Mayo Clinic on 12/16
Posted: Tue Dec 16, 2008 3:20 pm
by herff94
I'm telling you, all you have to do is ask. Ask the manager. My husband didn't believe me, I just took everyone up to our "house" (room) and my husband looked at me and said "what did you do???" I had to show him the paper work to prove what it cost. Ask, just ask......
And do you clothes shopping while you are there-0% tax on clothing.
Re: Mayo Clinic on 12/16
Posted: Tue Dec 16, 2008 5:03 pm
by raisab
We are here waiting for an MRI....They are so kind here! Everyone including the other patients are so friendly. Minnesota seems to have retained something my part of the nation lost!
Thank you all for the advice on restaurants, shopping and hotels! There is a chance we may be here over Christmas, wonder if the Radisson would do the same for us? Worth a try!!!!
Re: Mayo Clinic on 12/16
Posted: Wed Dec 17, 2008 4:36 am
by amoinet
Hello
I'll be at Mayo Dec 17th thru the 20th. This is my 5th trip. I avulsed c6,7,8 T1. Feel free to give me call if there's anything I can do to help. 703-618-3875
Re: Mayo Clinic on 12/16
Posted: Wed Dec 17, 2008 10:12 am
by raisab
Hi Aaron,
We are here also...and it looks like we are both from Northern Virginia. Look for the teenager with the dark glasses and black hair. (Me) His mom short haiar and on a little blue computer.
Re: Mayo Clinic on 12/16
Posted: Thu Dec 18, 2008 2:42 pm
by herff94
I had an appointment on the 17th and we in Northern Illinois got slammed with bad weather. Now today we under a sever winter storm watch with heavy winds, hail and then snow between 12-15 inches. I'm stay home. I rescheduled for Jan.............anyone going in Jan?
Re: Mayo Clinic on 12/16
Posted: Thu Dec 18, 2008 4:05 pm
by Carolyn J
Please share/post if you find each other.
HUGS all around,
Carolyn J
LOBPI/70 & Feisty!!
Message was edited by: Carolyn J
Re: Mayo Clinic on 12/16
Posted: Mon Dec 22, 2008 2:23 am
by raisab
Sorry I didn't follow=up after our visit!
We met the team and after performing all those "hit" tests...for those of you who have been there, they tap and punch and vibrate and pinch and prick....seeing what kind of response they get from the nerves and muscles.
They have advised waiting until a recheck in February as they seem to think C7 & C8 maybe coming back. That was great news. As for T1 which controls half of the middle finger and the ring and pinky, they did not detect any nerve signal there at all. They also advised to wait and see as it is impossible to fix that nerve in adults. The best they could offer was tendon transfer which would give some grip function but uncoordinated movement....
Right now all we can do is continue the therapies, wait and pray.
BTW, I was so very impressed with the entire Mayo Clinic. The patient truly comes first here, they have truly lived up to their mission. What a wonderful place!