United Brachial Plexus Network, Inc.

Joy-

Did Mark ever have pain in the side of his neck? Or does he still?

Richard

hi richard,
great to hear from you, yes mark does get pain in the
side of his neck,do you think it might be from the weight of his arm.
hope you are well
joy

Hi Joy-
To me, the pain in the top of my shoulder is related to my scapula not being in place. The pain in the neck at this point, could be something else.

I am at the 2 year mark on my shoulder problem, and I still have pain in my neck. My doctors in general ignored that because they were focused on my arm, and to them, the arm is the arm, and the neck is not part of the picture. But, in the case of BPN, the neck is part of it, and the doctors I have had were wrong to ignore it when I said I had pain there. The brachial plexus is after all, at least in part, in the neck.

So, my most recent doctor finally listened to me and suggested to check my neck. That was done with an MRI. The thing is this. Maybe your son has BPN caused by a virus. Maybe it is caused by something else. If they have ignored his neck pain, like my original doctors, they do not know the total picture. The things that can cause similar symptoms are in the neck and they can show up on an MRI.

Has Mark had an MRI of his neck?

hi richard,i think you are right, mark has said it to them about hhis neck but also ther are not listening to hih,as far as i know they only done a mri of his shoulder and arm, he is waiting for appointment for repeated testsand armed with your information i will mention it to themi dont know what i would do without people like you richard as no one here as even heard of it, it is such acomfort to talk to people who know what they are talking about, hope you are well and thank you again.talk to you soon
joy

I have scoliosis in my neck from the BPI. There is a vertebrae about half way up my neck that sticks out on the right side, trying to balance the weight of my left arm.

The massage has worked the best for me for the pain, although acupuncture & chiropractic also helped.

It might be something else in your case, but have you checked your spine alignment? The body always tries to find a way to balance itself, which can throw everything else out of whack.

hi heddip,nice to hear from you
yes massage seems to work well for him we have mentioned it a few times to the doctors about his neck but he compleatly ignores us so we are heading to our GP on fri
to see can we get a referral to another doctor
hope you are keeping well.

joy