United Brachial Plexus Network, Inc.

Brandy
I love being a hands on Mom and Grandmother.
I wish I could give you some magic advice on how to preserve your unaffected arm. It really does get overused when taking care of children.

I wish I had asked for help while raising young children and choose better household equipment to make my housework easier.

Now is the time, while you are young, to try to find ways that make it easier for you to do the normal routine tasks of life without straining your back, neck and arms.

Of course we all know that is almost impossible when our babies are small... LOL...
It's like the doctors telling us to nap when the kids were sleeping... I always thought that was funny.

Kath robpi/adult

YES, YES, Brandy & all MOM's with a BPI, PLEASE heed what Kath is saying and help PRESERVE your "good side" as well as your whole body--matter-of-fact! Do it while you are "Young" and you won't suffer the consequences of "DOING-it-all by myself SYNDROME" like Kath and myself & a few others.

HUGS all around,
Carolyn J
LOBPI,age 68


Message was edited by: Carolyn J

Hi. I am the mother of a beautiful 8 month boy named Joseph. He has LOBPI. We are just starting out on our journey. Is there any advise you can give me about how to make him feel good about who he is and help him feel like he's no different than anybody else?

Breonna

Hey, I thought I was alone too.

Joseph,
Love your child, encourage your child in whatever he wants to do, when he feels down about his abilities point out what he can do and how he can do things even if it is done differently from others. He will learn tricks to do things his own way if needed, PT/OT will help with that too.

Keep checking in with others on the message boards as your child grows up. We have tricks we can share.

Good luck to you and your family,
Marieke (31, LOBPI)
http://nurse-to-be08.blogspot.com/

PhillyKing, WECOME BACK!
It's been awhile...please catch us up on what you are doing. I rememmber your term paper on Brachial Plexus.

No, you are NOT ALONE. There are Many of us here & we are always here on UBPN Message Boards for you. Ask questions, Share and Vent frustrations. There are NO DUMB QUESTIONS on Any of the Forum Message Boards!

HUGS,
Carolyn J
Adult LOBPI,68,& Proud of it!!

Hi all,

Much like everyone here I too thought that I was the only one with this injury. I came across some information on a legal website that caught my attention. A mother was describing an injury that her daughter had suffered from and thought Hey that sounds like me she is talking about. It was on that website that I found a name for what I had wrong. I am a 29 y/o OBPI ( i think i got that right?) and I have tons of questions. I have been reading thru a few of the olders threads on this site and I am curious who is Dr Nath? also I have seen a few mentions of Mod Quad surgery? can anyone explain what that entails? I had a few surgeries that started when I was in the 5th grade but I do not know exactly what all was involved. I have so much to ask but I will stop there. I welcome any and all comments that anyone would like to share. My e-mail address id geishagyrL06@yahoo.com Feel free to contact me at anytime. Thanks in advance.