United Brachial Plexus Network, Inc. • Hello Board - Page 2
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Re: Hello Board

Posted: Sun Jan 15, 2006 8:17 pm
by Texas Robin
Thanks for the correct spelling of the doctors name in Virginia. The guy at my church had his surgery about 18 months after his accident.

Re: Hello Board

Posted: Mon Jan 16, 2006 7:57 pm
by lizzyb
Hi Aloha,

Really sorry but I can't help much here 'cos the last surgery I had was a fairly routine intercostal nerves to median grafts about 12 years ago now.

I had nothing else done because at that time, there wasn't any other real options out there for all five avulsed, and now? Well, frankly, I don't have the time or the inclination for muscle/tendon grafts or any other kind of surgery at all.

In my honest opinion, (for me this is,) I don't feel that the radical surgery and 2 yrs + recovery time is worth the very little regain in function, not to mention the very real fact that the odds of getting a successful outcome at my age is pretty slim.

I am totally used to my arm as it is and consider myself fully recovered, which is not the same thing as having full use back. So, definitely no further surgery for me, but I would and do support anyone who chooses to go that route.

All the best mate...

Lizzy

Re: Hello Board

Posted: Tue Jan 17, 2006 7:22 pm
by Aloha
Thank you for the reply.

It makes me feel better to hear people speak the truth. I too feel no need for surgery. The only reason i feel the need to search for options - is the fact i started to have movement in areas i never had.

I'll be getting an MRI soon and see where that leads :)

Anyone else have opinions - please reply :)

Re: Hello Board

Posted: Wed Jan 18, 2006 8:04 am
by lizzyb
Sorry..me again!! ;0)

Very best of luck with the MRI's and hopefully, you have considered having a few EMG's done too? In my personal (non-medical) opinion, I feel the nerve conductivity tests will produce more accurate results of any possible natural regeneration you have had.

Incidently, you are by far not the only person I have heard about/from who has had naturally occurring regeneration and re-innervation of muscles, particularly of the bicep. It makes you kinda wonder doesn't it?

Anyway, please let us know how you get on. I would be very interested to hear.

All the best...

Lizzy :0)

Re: Hello Board

Posted: Wed Jan 18, 2006 10:05 am
by admin
Could you please provide the doctor's contact information? My son has 3 avulsed nerves and we're looking for a surgeon who will take workman's comp. Thanks (C7,8, T1) MIchele

Re: Hello Board

Posted: Wed Jan 18, 2006 1:38 pm
by tspaulding
Michelle, I'm not sure where you are from. My RBPI is also a work injury. I'm currently seeing a doctor at Metrohealth Neuromuscular which you can find listed under the resources page at this site. They take my worker's comp without any problem. They are also wonderful people in helping understand this injury.