Outreach sightings?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
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Location: Wisconsin
Contact:
Contact Brenda333

Re: Outreach sightings?

Post by Brenda333 »

Sightings in Indiana at my mother in-laws
Brenda
Brenda
BPI Connection
http://www.freewebs.com/wbpic
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Shannon03
Posts: 161
Joined: Mon Dec 08, 2003 12:03 am

Re: Outreach sightings?

Post by Shannon03 »

Going to check the mailbox-I hope it's there!!! I really enjoy Outreach. Thank you to all of the people who make this publication possibe! It truly is a source of "awareness" for my friends and family (and Me!) who read the articles when they visit.
Thanks!
Shannon
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cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:
Contact cbe411

Re: Outreach sightings?

Post by cbe411 »

I got mine yesterday! Great articles about Botox! I have been wondering about this and the articles gave me a bit more info! Thanks!!
Court xo
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JessicasMom
Posts: 214
Joined: Thu Sep 18, 2003 4:59 pm
Injury Description, Date, extent, surgical intervention etc: 10 year old Jessica born on 9/6/03 with a LOBPI.
Mostly recovered, no surgery, still has remaining functional deficits
including no active external rotation.
Location: The Woodlands, TX

Re: Outreach sightings?

Post by JessicasMom »

Not in NJ yet!
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Anna G
Posts: 67
Joined: Thu May 16, 2002 4:15 pm

Re: Outreach sightings?

Post by Anna G »

it's in scotland too
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:
Contact Tanya in NY

Re: Outreach sightings?

Post by Tanya in NY »

Still haven't seen it in NY yet! Hopefully soon!

Tanya in NY
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Outreach sightings?

Post by Kath »

Still no Outreach for me in NY...

seems I love NY but the mail is slow...LOL...boo..hoo
Kath
Kath robpi/adult

Kathleen Mallozzi
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Outreach sightings?

Post by Carolyn J »

I recieved my OUTREACH on saturday,the 12th....ha ha Kath...LOL too!
Carolyn..Washington State
Carolyn J
Adult LOBPI
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angryparent
Posts: 95
Joined: Sun Feb 02, 2003 3:32 pm

Re: Outreach sightings?

Post by angryparent »

Nancy,
Can you please put me on the outreach mailing list?

You should have my address.

Thanks,

JAF
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njbirk
Posts: 1806
Joined: Wed Oct 24, 2001 10:09 pm

Re: Outreach sightings?

Post by njbirk »

John,
I've added you!
Nancy
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