Myotrac for use in BPI
Re: Myotrac for use in BPI
mommy,
Yes, it's been around for quite a long time. That's partly why I was *so* amazed that practically no one had heard of it, nevermind used one. We are trying hard to get the word out!
Kate
Yes, it's been around for quite a long time. That's partly why I was *so* amazed that practically no one had heard of it, nevermind used one. We are trying hard to get the word out!
Kate
Re: Myotrac for use in BPI
Kate,
On the other site you set up about the Myotrac, I have a couple of questions.
User Experiences : I have to register to read these? Or can I not read them.
I didn't see a section that gave hints or ideas on how to find the muscle. Looking for some of these as we have finally found a therapy center here that will work with biofeedback on Dustin. He is TBPI, I know there were others wondering how it would work on TBPI so hoping to have some good experiences to share.
Talked with Tom's phone person and Tom will call back tomorrow, he's out of the country right now. Also, the therapy center said they could order us a bio feedback at their cost ($350-$400). But, I want to see if it works for Dustin before ordering. Also want to see what kind it is. She didn't remember, so will check that out next tues at his appt. For now it means insurance should pay for his appts.
Sue
On the other site you set up about the Myotrac, I have a couple of questions.
User Experiences : I have to register to read these? Or can I not read them.
I didn't see a section that gave hints or ideas on how to find the muscle. Looking for some of these as we have finally found a therapy center here that will work with biofeedback on Dustin. He is TBPI, I know there were others wondering how it would work on TBPI so hoping to have some good experiences to share.
Talked with Tom's phone person and Tom will call back tomorrow, he's out of the country right now. Also, the therapy center said they could order us a bio feedback at their cost ($350-$400). But, I want to see if it works for Dustin before ordering. Also want to see what kind it is. She didn't remember, so will check that out next tues at his appt. For now it means insurance should pay for his appts.
Sue
Re: Myotrac for use in BPI
Peggy,
All the "informational" stuff is supposed to be viewable you don't need to register. You should be able to read anything outside the "Active Users Private Area". If you can't, let me know (there is a problem!) There is a (small) "Private Area" for discussion amongst users that touches on more personal stuff. Some active users wanted a non-public place to ask questions if necessary, but anything of substance will get moved or summarized on the public board. So although I'm limiting registered members to active users, you really aren't missing anything if you don't register.
For basics on how to get started finding a muscle, check out this post under "Tips and Techniques":
http://bpisemg.proboards102.com/index.c ... 1189736722
I think this is a wonderful tool for TBPI. I wish I had figured out the settings better when Courtney used it at Camp... I apparently had her on the LEAST sensitive setting, not the most (like I thought). I have changed that "settings" post to fix that.
Kate
All the "informational" stuff is supposed to be viewable you don't need to register. You should be able to read anything outside the "Active Users Private Area". If you can't, let me know (there is a problem!) There is a (small) "Private Area" for discussion amongst users that touches on more personal stuff. Some active users wanted a non-public place to ask questions if necessary, but anything of substance will get moved or summarized on the public board. So although I'm limiting registered members to active users, you really aren't missing anything if you don't register.
For basics on how to get started finding a muscle, check out this post under "Tips and Techniques":
http://bpisemg.proboards102.com/index.c ... 1189736722
I think this is a wonderful tool for TBPI. I wish I had figured out the settings better when Courtney used it at Camp... I apparently had her on the LEAST sensitive setting, not the most (like I thought). I have changed that "settings" post to fix that.
Kate
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Myotrac for use in BPI
Julia
I think Josh will do really great the Myotrac.
Most important of all ... is how does he feel about using it?
I really enjoy working on my arm. It's the first time in YEARS I am in control of MY OWN arm movement.
When I go to therapy it's usually passive ROM and Active Release to relieve contractures that seem to start in both arms...
Kath
I think Josh will do really great the Myotrac.
Most important of all ... is how does he feel about using it?
I really enjoy working on my arm. It's the first time in YEARS I am in control of MY OWN arm movement.
When I go to therapy it's usually passive ROM and Active Release to relieve contractures that seem to start in both arms...
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Myotrac for use in BPI
I am beginning to get some amazing results...
All I can say is WOW...
Kath robpi/adult
All I can say is WOW...
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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F-Litz
- Posts: 970
- Joined: Fri May 26, 2006 6:53 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
- Location: Ambler, PA
Re: Myotrac for use in BPI
We got the machine and I immediately put it on Maia on her unaffected arm so she could see that you didn't feel ANYTHING.. that way she didn't have to harbor any fear until we got to really using it. We just used it one time so far (only because of scheduling and exhaustion from life being too busy) but what we found was that Maia's biceps were always ON and that could turn them OFF by "thinking them off". Lou's been telling her for years "mind over matter" and now she REALLY has a sense that this is not just dad's silly talk but absolutely REAL. So as we begin to see what we can do with this unit - it will be very interesting to have Maia turn her muscles "OFF" rather than on.
We have some apppointments set for this coming week, PT, chiropractor (for Active Release), etc... getting the support system set up and a plan in place. I know that we have to work on Maia's passive range a LOT because she is majorly "stuck" in some key places.
We have some apppointments set for this coming week, PT, chiropractor (for Active Release), etc... getting the support system set up and a plan in place. I know that we have to work on Maia's passive range a LOT because she is majorly "stuck" in some key places.
Re: Myotrac for use in BPI
Well, I'll add our plug, too!!
Joshua now uses his triceps for everything are supposed to be used for! With the myotrac we quickly figured out that he actually was always just "propping" himself onto his BPI arm with his elbow locked out. So he never used his triceps at all! He was so tricky about it, no therapist ever noticed. And all that weight going straight through to the shoulder without any active muscle... it winged like crazy. His horse-therapy team saw it today, he was reaching for things, on the back of the horse, on all fours, supported totally on his left arm. He could do this before but without any real balance. And now his shoulder looks SO much more "normal" and he can hold himself up with his arm slightly flexed and the muscles working like they are supposed to. He can push up from prone. He no longer looks like a "fish out of water" when he's trying to get up from the floor wrestling with his brother. The "light" came on for his triceps.
Now we just have to figure out how to get a light on for his abduction. I am positive it's there...
Kate
Joshua now uses his triceps for everything are supposed to be used for! With the myotrac we quickly figured out that he actually was always just "propping" himself onto his BPI arm with his elbow locked out. So he never used his triceps at all! He was so tricky about it, no therapist ever noticed. And all that weight going straight through to the shoulder without any active muscle... it winged like crazy. His horse-therapy team saw it today, he was reaching for things, on the back of the horse, on all fours, supported totally on his left arm. He could do this before but without any real balance. And now his shoulder looks SO much more "normal" and he can hold himself up with his arm slightly flexed and the muscles working like they are supposed to. He can push up from prone. He no longer looks like a "fish out of water" when he's trying to get up from the floor wrestling with his brother. The "light" came on for his triceps.
Now we just have to figure out how to get a light on for his abduction. I am positive it's there...
Kate
Re: Myotrac for use in BPI
It was a little disconcerting when I changed Joshua into his nighttime clothes. He still had his triode on.
me: "Kate, you forgot to take the triode off!"
kate: "Keep it on, it hurts to take it off."
me: "What will people think we're doing to our child if we leave it on?"
me: "Kate, you forgot to take the triode off!"
kate: "Keep it on, it hurts to take it off."
me: "What will people think we're doing to our child if we leave it on?"
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Myotrac for use in BPI
Tom
I think that's funny but I agree with Kate.
I pulled one off and had a red mark for two days.
After that I took them off more carefully.
I wonder what people will think...LOL... I would love to see their faces.
Kath robpi/adult
I think that's funny but I agree with Kate.
I pulled one off and had a red mark for two days.
After that I took them off more carefully.
I wonder what people will think...LOL... I would love to see their faces.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
