United Brachial Plexus Network, Inc. • Living conditions
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Living conditions

Posted: Mon Aug 16, 2004 2:12 pm
by hopeless
What about your living conditions? Are everybody live in good conditions here? Can you get any support for your life from anybody or any institution?

To earn life is not easy especially if you are a disable people like us. I have family and I don't earn much money. I don't have a house so I have to rent. I have lived in flats with stoves. It is not easy to use stoves. You have to empty its bucket, then put coals and woods then carry and burn. I am planning to rent a flat with central heating but they are not cheap. Is there anybody having such problems here? How can you solve such problems?

Thanks

Re: Living conditions

Posted: Tue Aug 17, 2004 3:31 pm
by admin
What does this have to do with BPI?

Re: Living conditions

Posted: Wed Aug 18, 2004 1:03 am
by admin
Hi,
I am sorry about your predicament, and hope that there is a solution in the country you are in. (I'm in Canada). My sister, Erica is the one with the RBPI...life for her has not been easy. When she was going to college and needed medications. She was on student loans at the time, she used all her living allowance on the drugs she needed. Later we found out she could have easily obtained a card from the government that would pay for nearly all her meds. She is unable to hold any sort of job (was actually laid off because her disability prevented her from doing her job). She qualified for AISH (Assured Income for the Severely Handicapped), so that is her income. She was able to purchase a small home (with a bit of land) in the country. Her mortgage payments are small, but her AISH cheques are also small. She is very creative in how she makes ends meet.

I've read on here amazing stories of how BPI adults are able to hold wonderful jobs. Unfortunately not my sister. My sister struggles like you to pay for day to day living. She relies on the government (money), neighbors (support and rides in to town), family, and church (purpose in living).

Find out what government funding is available to you. If you are involved in any religious organizatiopn, there should be some sort of help available that way.

I hope that things start to look brighter for you.

Jillianne

Re: Living conditions

Posted: Wed Aug 18, 2004 8:09 am
by admin
I'm so sorry for your sister Jillianne,
I am happy and thank to God because at least I have a job and regular income even though it is not sufficient. Thanks my God

Re: Living conditions

Posted: Wed Aug 18, 2004 8:12 am
by hopeless
Jillianne, I'm so sorry for your sister's situation. In fact I have a job and a regular income (even though it is not sufficient) and I thank to God all the time thinking people in much worse conditions than me.

Thanks

Re: Living conditions

Posted: Wed Aug 18, 2004 12:18 pm
by Kath
Jillianne

Please tell Erica I think of her often and wonder how she is doing. I am glad that she has some help but most of all I am glad she has a loving sister like you who really tries to understand her challenges.

Give her my best and tell her I sent a big bpi hug
(((((((((((((hug>>>>>>>>>>> from Kath robpi.....