United Brachial Plexus Network, Inc.

Hello,

My son Jason is 10 months old with a ROBPI. We just saw Dr. Nath on Wednesday and he wants to do Mod Quad in September.

Can anyone give me some feedback on what to expect as far as the surgery, splinting after surgery, therapy after surgery and most importantly results?

Any information would be GREATLY appreciated!!!

Thank you!!

Dani,
There is a lot of info. about the MQ here: http://www.injurednewborn.com/maia/homepage.html

We also saw Dr. Nath on Wednesday and our daughter is 9 months old!
Did Jason need primary? If not, what is his current function?

Michelle

With the mod quad, or other procedures involving transfers/releases children usually gain lots of new movement and range. However, it seems that with these procedures elbow down, supination and shoulder joint issues (subluxing) are not addressed, which is why we ended up going with a different procedure.

Where did you have another procedure done? What were the results?

What other procedure did you have done and where?
What were the results?

Guest,
What do mean by "it seems with these procedures ...?" Did your child have the mod quad?
I am not trying to be argumentative or start any kind of big discussion, but I am curious to know if you are medically trained, and where you are getting your medical information, because I think it is kind of irresponsible to throw around veiled references about surgeries without disclosing your training and/or sources. Please be specific and offer proof. Thanks.

Liz:

Having the mod quad before 2 years old ISN'T premature in cases like my son Danny's. His internal rotation was so strong that the doctors thought it was very important to correct it at 10 months of age while his little nerves/muscles/tendons were still growing so fast. The mod quad was a very necessary surgery for Danny, and we would do it again in a heartbeat.
Dani ... the mod quad is a great surgery. Please don't second-guess yourself.

Janet

I'm not trying to stir anything up with the 95% recovery. We have been told by a few BPI specialist this. Her shoulder has formed correclty, she can fully supinate, swing her arms, etc. The only thing we can not do is put her arm behind her back. She can put her hand in her back pocket and put her hands on her hips.

Every injury is different. Some are not as severe as others. Every child heals different also. The doctors are surprised at how well she is doing. If we could get our hand behind are back we would be just like every other child. The scapula does wing a little bit because it is still a little weak. You would never know she was injured. We don't keep the elbow anymore very much either. It has taken awhile to break that habit but we are there now.

Lisa

Lisa
What wonderful news! I hope things keep getting better and better and pretty soon she can reach behind her back.
You are so right every injury is so different and we also heal in different ways... this is such good news.

Kath