United Brachial Plexus Network, Inc. • adult with erbs
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adult with erbs

Posted: Thu Sep 25, 2003 10:05 pm
by Tom mcb
This site is great. There seems to be a lot of info about
erb's palsy.

I am 28 yrs. old and I have klumpke's palsy. I have been doing physical rehab for the past three years and the results are terrific. I never knew that there was a name for this condition or what caused it until about a year ago.

I am interested in finding out about different types of therapy that are effective.

Re: adult with erbs

Posted: Thu Sep 25, 2003 11:02 pm
by BarbH
I really don't know to much about this injury, even though my 7 month old daughter has it. She started water therapy and it has had wonderful results just in the short amount of time she's been doing it. The very first day I noticed a big difference. She actually relaxed her arm and hand for the remainder of the day! I was so excited!
I don't know how water therapy would work for you but I guess it might be something to ask about. My husband and I are very happy with the results we've seen.
Take Care,
Barbara

Re: adult with erbs

Posted: Fri Sep 26, 2003 9:01 am
by admin
Hi:
Glad you found this site. Everyone here is very helpful and full of support! As well as posting your questions on this board you may find it more helpful to post under the:
Obstetrical Brachial Plexus Injured Adult board
Take care for now.
Krista

Re: adult with erbs

Posted: Fri Sep 26, 2003 10:08 am
by m&mmom
Tom,
Our son is still little but we have him involved in a variety of therapies. Physical & occupational therapy, aqua therapy, acupuncture, chiropractic, reflexology, myo-fascial release, e-stim, massage, and reiki energy.

Cindy

Re: adult with erbs

Posted: Fri Sep 26, 2003 10:15 am
by Dean-na
Tom:

Hey, I am a 32 year old with Erb's. I found this website in 5/03, and had surgery 6 weeks ago. This board has helped me a great deal. I started therapy after my surgery. I never went before that. They started me off slow, but now I have a bar (can use a broom or golf club) & lift my arm with it. I also use a pulley. There are many things you can do, but you might want to fing a bpi doctor first.

~Deanna

Re: adult with erbs

Posted: Fri Sep 26, 2003 10:38 am
by jep98056
Tom:
I'm 64 years old with ROBPI. Physical therapy was the only treatment available to me and I had weekly PT at an orthopedic clinic and on the dining room table for almost 12 years. Stretching, strength, and swimming exercises were all part of therapy during that time. I had a surgery at age 13 that improved my ROM to what I have today. PT and OT are an integral part of reaching the maximum possible recovery from this injury but surgery is a consideration even for adults. Several adults that contribute to the Forums have had surgeries and I learned that I'm a candidate at the recent UBPN Camp.

Deanna is right - obtaining expert BPI medical help is crucial to maximum possible recovery.

John P.