United Brachial Plexus Network, Inc.

I live in Minnesota and need to know if anyone has seen any Dr's here who specialize in these birth injuries. We are in the middle of finding out what the MRI will show and need to know where else to go, Texas is hard to fit in our budget. Thanks to all.....

Hi Tracey
We live in Houston and we have a beautiful girl with obstetrical braquial plexus too. Don't worry if you would like to come here and is not in your budget. We would like to help you. You will stay here in our home, we will provide you all the meals, transportation to the TCH and to the airport too. Please don't worry for the money. We do not want people have the same experience we had when we arrived to Houston with a girl and alone.

The social worker at the Texas Children's Hospital Gina Nasiff could give you a code to get a low cost air tickets with Continental and the travel agency in charge is Allegro Travels here in Houston. Also some airlines offer free tickets when you are a low income family and the trip is for medical treatment or evaluations. This means will be a free all inclusive for you. The only question I have is do you have medical coverage for the evaluation here? Email me back ivelissemor@msn.com. We will be waiting for your reply.
Jose & Ivelisse Morales

I just wanted to say Jose and Ivelesse, how wonderful your offer was to allow someone needing help to stay in your home, transportation and meals. Your daughter is very lucky to have the two of you for parents. You make the ultimate sacrifice and then keep on giving. Someday (probably not when she is an adolscent!) she will be very proud of the two of you and what you have gone through for her all out of love. And to just keep on giving. I just needed to let you know how "in the holiday spirit" your invitation made me feel. You will surely be rewarded someday and I hope it is to see your child dance the happy life.

Ivelisse - you are a beautiful person and I'm so glad you came on this message board and are part of our community! I am just awestruck at the love you and your husband want to share and support for all.

We are going to be in Houston from December 8 to December 12. We have Saturday night and Sunday all day to just relax and go to the hotel pool and do something relaxing before Monday's surgery. Would you like to come by and visit with us? There will be many families there from this message board at the same time - all staying at the Best Western it seems.

Let me know - I would love to give you that big hug you deserve, in person!

-francine

Hi Tracy,
There is a doctor in Rochester. I believe he is associated with the Mayo Clinic. Also, I know of another family who took their child to Shriner's Hospital in St. Paul.(I'm not sure if it's St. Paul but I believe it is) I know there was a Mom who used to post who had good experiences with Minnesota doctors. Hopefully, she'll see your post and respond soon. Good Luck!
BTW, I'm in NJ but have family in Minnesota(White Bear)

Thank you to all for your information and caring about our situation. It is a very hard decision to make; surgery verus non-surgery and then trying to predict the outcomes of it in the future. I wish we could take legal action against the Dr. who "helped" in this birth injury, but he covered his bases very good in the reports and we don't have any good evidence to support us in court. He doesn't have the lifelong problems and therapies with this injury, among other things. Thank you all again for offering us your home, help, and information. This is a situation I never thought I would be in......Thanks!!!!

Francine thanks to you and to all the people who see this pages. Thanks for all your words. I will give you a big hug too! We are very happy of find this message board too.

Also we want to said THANKS!, THANKS! for all the emails received . We were alone and now we found a big family of different nationalities in a record time, less than a week. This have to be in the Guinness Record! You don't know how happy we are now. To all
the people giving us support and love Please, still doing it. I will print all the emails and when Jocey grow up will see all those beautiful notes.

I want to said also about all the questions they sent to our email is better if they post here on this board, we will answer to all. At the same time together we will share and learn too. Remember this is the only way we, all the families who have braquial plexus kids, could learn together and share our experience. We want to share all our novelties about Jocey and the knowledge we have about her treatment too. Thanks, again.

Jocey's appointment with the new Doctor from Canada will be tomorrow Tuesday evening (4:30 pm). I will post a new message after this appointment with what he tell us. We has been receiving lots of emails asking several things about this kind of surgery, what we will do? who will be the surgeon? How is this procedure?

Francine Jocey's surgery seems to be the same week you will be here in Houston too. It means we will be together at the hospital! That's why I want to get all the information about this kind of surgery soon. I sent the email to the family you told me had the same surgery, but we have not received any answer. Thanks,

Ivelisse

Tracey thanks for the email and remember our doors will be always open.

I just wanted to say your daughter has two very kind and loving parents. For your compassion in helping people made me cry. I am so glad there are people like you. I pray your daughter has a good recovery.