New and confused
Posted: Thu Aug 25, 2011 10:52 am
I am new to the forum and new to BPI knowledge. If I have posted this in the wrong area I am sorry.
Well here's my story maybe who ever reads this won't think I'm crazy like the doctors do.
I was born in 1992 in a birthing center then they measured the baby's head but not there shoulders. Well my mother being 4'11" 90lbs I obviously didn't fit. By the time they noticed it was too late.
My arm was paralyzed for the first 8 months of my life but due to my mother being in the medical field she did physical therapy 4 times a day. By the time i was 3 i was riding horses by myself. Then at 4 I started dancing and gymnastics. I soon after noticed I couldn't supinate and my left arm was weaker. I was taken to about a dozen doctors and they all told me the same thing I had nerve damage there was nothing they could do.
The interesting thing is eveen though I had a birth injury I had never had a nerve test. And every doctor my mother found refused.
I started competing in dance when I was 6 and by the time I was 10 I was in national competitions. I then noticed how tight my tendon in my elbow was and how my supination was extremely lacking.
I shattered my left arm in dance when I was 13 and had to retire. When I was 16 I started competing in ROTC pt competitions. Then when I was 17 I took everything in my own hands. I went to a well known neurologist and told him I needed answers.
I was tired of being ignored and not listened too.
This neurologist told me he couldn't do anything till I was 18. So I had more waiting. When I turned 19 I finally got the go to have a nerve test done. He was amazed my forearm was over active my deltoid was overacting and scapula muscles were weak and so were my bisceps. he said I had erbspalsy that I had a brachial plexus injury.
I then saw a doctor at my mothers work who just wanted to look at me. And he was amazed looked at me for 2 hours just holding his chin saying hmm... Supposably I should've never been able to be a active child let alone competitive dancer. He then diagnosed me with dystonia. Also that my winged scapula was bad.
He said the branch of nevers controlling my lower biscep also controlled my lower left back and both muscle groups were perminitely tense causing the tendon in my elbow to be tight. As well as the back muscles being tense on one side caused me to have Scoliosis.
So about 2 months ago i was sent to a different neurologist and the decided they were going to try and fix the tensed muscles. So I had botox injections. In my bisect and lower left back the dosage was spread Into 22 shots into my bisect and 14 shots into lower back. He accidental hit my scapula muscle so my severe winged scapula is now a winged scapula that makes me not sleep at night. I can wing as far as 4 to 5 inches out depending on the weight I'm trying to hold. It also wings in ever direction like every muscle is bad instead of one.
During the procedure they gave me anti anxiety which the now know I'm immune and 2 doses of twilight injection. And I am immune to that too. So they had my mother and 2 nurses hold me down. Only because they found that my nerves are beyond hyper active.
I am now in physical therapy for over a month now. Staying positive and staying I think it's helping... When in the back of my head I don't notice anything. I still struggle doing a biscep curl with a 1 lb weight. And I still can't supinate my arm.
Sooo.... That's my story. I am sorry it's so long. But I am curious is there another adult that has gone through what I have or has experienced any of the same problems? Maybe a way to help the supination or how they were helped. Also the winged scapula.
Well here's my story maybe who ever reads this won't think I'm crazy like the doctors do.
I was born in 1992 in a birthing center then they measured the baby's head but not there shoulders. Well my mother being 4'11" 90lbs I obviously didn't fit. By the time they noticed it was too late.
My arm was paralyzed for the first 8 months of my life but due to my mother being in the medical field she did physical therapy 4 times a day. By the time i was 3 i was riding horses by myself. Then at 4 I started dancing and gymnastics. I soon after noticed I couldn't supinate and my left arm was weaker. I was taken to about a dozen doctors and they all told me the same thing I had nerve damage there was nothing they could do.
The interesting thing is eveen though I had a birth injury I had never had a nerve test. And every doctor my mother found refused.
I started competing in dance when I was 6 and by the time I was 10 I was in national competitions. I then noticed how tight my tendon in my elbow was and how my supination was extremely lacking.
I shattered my left arm in dance when I was 13 and had to retire. When I was 16 I started competing in ROTC pt competitions. Then when I was 17 I took everything in my own hands. I went to a well known neurologist and told him I needed answers.
I was tired of being ignored and not listened too.
This neurologist told me he couldn't do anything till I was 18. So I had more waiting. When I turned 19 I finally got the go to have a nerve test done. He was amazed my forearm was over active my deltoid was overacting and scapula muscles were weak and so were my bisceps. he said I had erbspalsy that I had a brachial plexus injury.
I then saw a doctor at my mothers work who just wanted to look at me. And he was amazed looked at me for 2 hours just holding his chin saying hmm... Supposably I should've never been able to be a active child let alone competitive dancer. He then diagnosed me with dystonia. Also that my winged scapula was bad.
He said the branch of nevers controlling my lower biscep also controlled my lower left back and both muscle groups were perminitely tense causing the tendon in my elbow to be tight. As well as the back muscles being tense on one side caused me to have Scoliosis.
So about 2 months ago i was sent to a different neurologist and the decided they were going to try and fix the tensed muscles. So I had botox injections. In my bisect and lower left back the dosage was spread Into 22 shots into my bisect and 14 shots into lower back. He accidental hit my scapula muscle so my severe winged scapula is now a winged scapula that makes me not sleep at night. I can wing as far as 4 to 5 inches out depending on the weight I'm trying to hold. It also wings in ever direction like every muscle is bad instead of one.
During the procedure they gave me anti anxiety which the now know I'm immune and 2 doses of twilight injection. And I am immune to that too. So they had my mother and 2 nurses hold me down. Only because they found that my nerves are beyond hyper active.
I am now in physical therapy for over a month now. Staying positive and staying I think it's helping... When in the back of my head I don't notice anything. I still struggle doing a biscep curl with a 1 lb weight. And I still can't supinate my arm.
Sooo.... That's my story. I am sorry it's so long. But I am curious is there another adult that has gone through what I have or has experienced any of the same problems? Maybe a way to help the supination or how they were helped. Also the winged scapula.
