United Brachial Plexus Network, Inc.

UPDATE!!!!!
Wow, still getting email about the study, which is great, but I have actually moved from Rochester and am now no longer helping out. I would send any inquiries to the Mayo Clinic in Rochester , Mn.
Also, I sadly closed the videos down because it was brought to my attention that they could too easily be copied and reposted without my permission and they were just meant to be viewed on this site alone. A bummer.
Take care all.

Angela you look great! congratulations on all of your success,you have such a beautiful attitude and a beautiful smile,may you continue to shine!

Thanks so much It's been great hearing your honesty about your struggles on this board.....It's sooo inportant to share your journey so others don't feel so lost. Keep up the great work yourself

WOW!!! amazing!! i can see why you are so excited.

Can you remind me how long ago your surgery was?

you are doing phenomenal! Congrats!

Thanks so much for al the nice comments everyone! They are really appreciated.
Also, even though this is the tpbi board, if any of you happen to know an obpi who may be interested pease encourage them to participate as a study like this can only help the entire community in the end.
Thanks,
Ang

Update

An excellent question was emailed to me asking if people who participate will also recieve an evaluation or will the info just be written up in a study and they will not have access to it. Here is the reply from Dr. Elhassan:

"I'm willing to evaluate and give my recommendation about potential treatment to any patient who requests so. This is one of the main reasons I decided to see all patients myself"

So just to sweeten the pot a little, though the participants must pay travel expenses (travel, room and board, food, etc), it is a chance to get a free evaluation by a Mayo clinic BPI surgeon. This type of consultation usually costs around $500 and many people can't even get the the referral to get the consultation so this is a rare opportunity for many of you to get a free consultation from a Mayo BPI expert and also, hopefully, helps justify some of the travel expense.

i love to prep & cook and i've always felt there is nothing like a beautiful woman with a razor sharp cleaver. i'm very happy for you. thank you for posting the link. doug

UPDATE: X-rays

Here are some extra details about the process of the xrays for those who chose to have them done at the local hospital of thier choice (this is especially in the cases where he would fly to meet people do the physical evaluation and it woud much more convenient to have the xrays already done)


1) Q:

How recent do the xrays need to be (as in if they've had xrays in say
the last 6 months would they still need new xrays?)

A:

Xrays obtained over
the past 2 years are acceptable especially for those older than 20 yrs

2) Q:

Do they need a referral from you to get the xrays done (I think most
will) and if so, how do they get it?
A:

If they are willing to do the xrays, then let them email me with their
information and I will fax xray request for them

3) Q:

If they get xrays in their hometown, by what method do you plan to
reimburse them? (Check, cash, etc. )?
A:

I can do it either way, money or check.