United Brachial Plexus Network, Inc.

Hello all. My name is Amber and I am a 16 (soon-to-be-17) teenager who suffers from an OBPI. I'm new to this website, but it appears that everyone is friendly. Ive always been a little insecure about my injury because ive never met anyone with it. I am really interested in finding out more about other people's cases of OBPI , so I am asking that you PLEASE fill out an anonymous survey to assist me in my Senior Research Project. By filling out the survey you are giving consent to allow your information to be displayed collectively as part of my research. The link is listed below. I look forward to your responses!


http://www.surveymonkey.com/s/F2NQSHG

Welcome Amber!
There are a small group of teen girls on the "Adults & Teens with OBPI" Message Board. Please post there too.
Also, FYI,our "BPI Stories" are on the far right of our posts. ---> Mine is a little long
I hope Becka and Elizabeth see your post here and respond.
FYI your survey was not too accurate because it left no place for a comment...like NOW I am OK but grew up very depressed & have had several years of Counseling to help...that's just 1 example.

Carolyn J
LOBPI/72++++

Thank you so much for the feedback! I'll try to add a comment box This website is really cool to me; i never knew that soooo many people were like me! ha, guess its not so "rare". Anyway, im not sure where the teen message board is?

-Amber*

The teen board is "hidden" until you join, email/pm rich looby and he can set you up

i helped good luck on your project!!

I filled out the survey for my daughter but I have a note about it - there was no place on the survey for a note....

Even though I filled out the checkmark bottom list, in our particular case, please don't connect the list with Maia's bpi.

As I see it, the bottom list (for Maia) is more related to normal puberty and hormonal changes and the possibility of her having thyroid disease which we are seeing specialists for. Also, any one of those symptoms can be diet and activity-level related. I know that when Maia's diet is out of whack - Maia is out of whack - she is depressed, sleeps more, is more irritable, doesn't want to go out and get fresh air -- just every part of her breaks down. And when she is eating well and exercising more - she has few or none of those symptoms. But none of them are directly related to her bpi issues.

good luck
-francine