United Brachial Plexus Network, Inc.

Hi! I´m a mother from Argentina and I have been a member of ubpn for may years already. I would like to get in touch with somebody from UBPN who can help me with legislation passed in your country (I have been contacted by a Senator from my country and I guess I'll need your help so as no to miss this golden opportunity!!!)Besides, I am working hard with a support grpoup and we´d like to organize a gathering or a day-long seminar or workshop and I also need some help as regards how to approach possible speakes.Finally I want to ask for permission to translate your awaress brochure to be able to distribute it in hospitals.Thanks a lot and as we say as a farewell in our support group "a no bajar los brazos!!!"

You can contact Rich@ubpn.org he is the current President of UBPN.

I wish you luck with your efforts to gain mandatory reporting. I truly hope you can accomplish this goal.

Patricia..you are amazing, I am so glad that you are willing to help translate the information for UBPN. I know that the Spanish speaking families will really appreciate your dedication. Let us know what happens in Argentina with the legislation. Abrazos! Betsy

Hi !

It sounds like you have a great opportunity. Unfortunately, so far there has been no legislation passed in our country in regards to BPI's. There was an attempt made by Kathleen Kennedy in Iowa several years back. The Bill's language can be found in the following links:


look at bill 251 and 252 on this link:

http://www.legis.state.ia.us/GA/78GA/Bi ... index.html

bill 251

http://www2.legis.state.ia.us/GA/78GA/L ... rrent.html

bill 252

http://www2.legis.state.ia.us/GA/78GA/L ... rrent.html


As for contacting speakers, you will need to determine what the seminar will focus on. Will it be prevention of OBPI, treatment of OBPI, awareness of BPI and/or support for those with BPI. Once you determine the focus, then identifying speakers would be more obvious (Midwives or OB's, surgeons, Life counselors etc).

As for permission to translate the Brochure, I think that is a wonderful idea, UBPN would be pleased to include the translated material on our website. Once more, if any other people in our community would like to translate to their native language we would like to encourage that.

My email is richard@ubpn.org if you have any specific questions. Please don't hesitate to ask.

Rich Looby
President UBPN

YEAH!!!!!!:)

I'm sending you my best wishes, good thoughts and a Prayer for your success. If you can do it there in Argentina it certainly can help us here in the USA.

Carolyn J/age 71