United Brachial Plexus Network, Inc. • Bpi Mtg with Senator Mikulski tomorrow...
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Bpi Mtg with Senator Mikulski tomorrow...

Posted: Thu Mar 25, 2010 10:08 pm
by Sharon G.
Please wish Tess Gavagan (15 y/o) good luck tomorrow from all over the U.S. (or world). She is meeting with Senator Mikulski and Senator Dole is her sponsor - asking to be included in the 2010 Senate Appropriations Bill. She is asking that brachial plexus research be federally funded. This includes research for treatment and prevention. Tess will be testifying on our behalf just like Michael J. Fox does for Parkinson's research. Just tonight she asked me if she was going to be doing this alone. I told her that Senator Dole (who has a tbpi) is with her but she meant all of you. I would love to show her tomorrow right before she goes in to speak that she has lots of support and that she is not alone...so pls. send her your best wishes on this board. I know she will bring these warm thoughts with her to the Capital (1:oo) tomorrow.

Re: Bpi Mtg with Senator Mikulski tomorrow...

Posted: Thu Mar 25, 2010 10:15 pm
by saramillet
Good for her!!! How wonderful! I wish her the very best of luck!

Re: Bpi Mtg with Senator Mikulski tomorrow...

Posted: Thu Mar 25, 2010 10:31 pm
by AngieD
Tess- What a awesome and strong young lady you are. Thank you so much for doing this for all of us. My daughter is 14 with OBPI. Even though we are not there in person with you, we will be cheering you on.

Best of luck and please tell us how your experience went.

Angie

Re: Bpi Mtg with Senator Mikulski tomorrow...

Posted: Fri Mar 26, 2010 9:45 am
by Chris88
It’s great to hear that the former senator is backing you on this. :D
Thank you Tess and good luck!

Chris
39 LOBPI

Re: Bpi Mtg with Senator Mikulski tomorrow...

Posted: Fri Mar 26, 2010 10:25 am
by richinma2005
This is a great effort. Perhaps this funding will allow a great advancement for treating these injuries. For a young woman to have the courage to step forward and try and do something like this is fantastic. I hope the meeting goes well!

This could shape up to be a great feature story in Outreach!!!


rich

Re: Bpi Mtg with Senator Mikulski tomorrow...

Posted: Sat Mar 27, 2010 10:23 am
by Carolyn J
OHHHHHH TESS!!!! How did I miss this??? SOOOO sorry! PLEASE post an update of your experience.
I AM VERY VERY PROUD OF YOU!!!! You Rock, Girl :mrgreen: 8-)
I do hope you come to Camp 2010!

HUGS,
Carolyn J ,age 71