United Brachial Plexus Network, Inc.

Looking @ /about Doc.'s Our daughter is 6 now, needs a new OBPI doc. , we live in the north panhandle of florida. Thanks

We really like Dr Kozin, he's in Philly at Shriner's. We fly from Michigan, he's worth the trip. The travel's a pain, but it's free at the hospital, they never charge for any of their services. My son had the ACR surgery in October there, so we've been out there several times in the last year. There's also a couple Ronald McDonald houses in that area, $15/night. They really help keep the travel costs down. Good luck with your search. Oh, also if you look at the resources page, there's a Dr listing, I think your can search by state.

Dr. Kozin is a great doctor and Shriners will help with the transportation if you have an appointment. I met a lady there from Florida at our last visit.

We have a medical resource page on the website. You can search via state. The docs have filled out a questionaire online, so you can learn a little about them. Most are quite email friendly and will answer questions via email, though you will probably have to see them sooner or later.

I recommend getting at least two opinions, if not more.

I take our daughter to see Scott Kozin, Andy Price and Peter Waters.

good luck,
claudia

We are seeing Dr. Kozin now, great doc, but our insurance will no longer pay for us to fly up to Philly, so we have to find one here in Florida.
So besides Doc. Kozin and Doc. Nath, know any here in the state of Florida? Thanks :0)

angelsmom1, you should check out miracleflights.org if you would like to continue seeing Dr.Kozin. They helped me out when I had to take my granddaughter to see Dr.Kozin.

I am so excited to see so many good comments about Dr. Kozin. My daughter has an appointment to see him next month for the first time. She is 8 yrs old and has recently seen Dr. Nath at an outreach in NJ. He recommended surgery for her but I am taking you alls advice and getting a few more opinions. The people at Shriner seem very nice over the phone. I'll let you know how everything works out after I get back next month.

angelsmom,

We've been able to get help from our local Shrine for transportation to/from Philadelphia from Los Angeles. They helped even though Dr. Kozin wasn't the closest BPI surgeon in the Shriners network, because we were an established patient already. The local travel coordinator for Shriners (Susan is her name I think?) gave us the contact information for the local Shrine.

Kate

Yes, our local shrine also pays for transportation (flight for my son and one parent)...and our hotel stay.
They have also paid for our cab rides to/from airport, hotel, and hospital. What an absolute blessing!