United Brachial Plexus Network, Inc.

I want to thank everyone for the support and ongoing communication that you give to each and everyone of us. This board is a place where I come to question,learn, vent, and celebrate. Today, I want to celebrate... Because of UBPN, last, Wed. for the first time ever, I had the opportunity to meet another mother of a child injured during birth. I can't explain the feeling I had when I looked at her and said, "I know how you feel". I have never been able to look at "eyes" that truly know how I feel. I felt immediately connected. I am just thankful that I had that experience.

Boy do I understand that feeling...I was 18 when I first met another person with a bpi it was increddible. You suddenly dont feel so alone anymore.

Glad you had the opportunity to meet up with some one!
Hugs,
Amy 22 years old ROBPI from MN

Maggie had first met someone else with BPI at camp (I met someone that had a child with BPI when she was a baby but I had lost contact with her until we came on this site), she was 5 and was so amazed at all the people that had an arm like hers.

Now we go to the support group in St Louis and Maggie absolutely loves meeting others with an arm like hers. Support is a must with this injury, because noone else knows exactly what we are feeling except others in our situation.

Glad you found someone.

I am "friends" on myspace with Lawrence (PhillyKing) and he has some awesome clips that Jojo loves to watch over and over. He says "show me that cool guy with my injury arm". I can't wait until he actually meets another BPIer

It was an amazing experience! It is hard to believe that we live so far apart, yet we are so connected by our experiences.

As an adult who never had a correct name for my injuries until age 65 & thought I was the only one all alone,until I found UBPN I can say it is Lifechanging to have people instantly understand and when I went to Camp 2005 & met the people on here in person as well as see the children & se their eyes light up and ask me questions I began to heal my emotional hurts almost immediately. I actually had to retreat to my room at times my emotions welled up sooo unexpectedly...but then I'm old too...LOL!!
Camp 2007 was amazing too as my son went wsith me and understood even more about "differences" and how nothing can stop you from doing anything you want to do.
Please plan to atend our next Family CAMP 2010. The Mom's really had a great get-togethers and there are pleny of volunteers and activities for all ages. We have F-U-N & learn alot too.

Hugs all around,
Carolyn J
Adult LOBPI/70 1/2


Message was edited by: Carolyn J