United Brachial Plexus Network, Inc. • desperate for help in Mineapolis/St. Paul, MN
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desperate for help in Mineapolis/St. Paul, MN

Posted: Thu May 23, 2002 8:14 pm
by doreen
My name is Doreen - I live in Mpls/St.paul. I am desperately in search of a rehab or physcial med doctor AND a physical therapist familiar for brachial plexus/tos disorders.. If ANYONE can offer suggestions in this area I would be so grateful. Sincerely, Doreen

Re: desperate for help in Mineapolis/St. Paul, MN

Posted: Thu May 23, 2002 8:51 pm
by jennyb
hi doreen, maybe this will help, it's fropm the medical resorces section on the home page.

Minnesota BPI Specialists/Clinics
Ann Van Heest, MD

Approved contact information:
Gillette Children’s Specialty Healthcare
200 East University Avenue
St. Paul, MN 55101

phone: 651.291.2848
website: www.gillettechildrens.org
Also can contact Nurse June Hamerski
phone: 651.229.3889

Plus, mindy who sometimes posts here lives in Minnesota, if you click on her name you can mail her. She hasn't had much help medically but it might be nice to speak to someone who is relatively local....good luck in your search. Jen NZ

Re: desperate for help in Mineapolis/St. Paul, MN

Posted: Sun May 26, 2002 12:22 am
by marylu
Hi Doreen,

My partner is tbpi from an accident on August 11, 2001.
He's been going to Sister Kenny rehab in Minneapolis.
We've broken some trail for you there. He is seeing
Dr. Spierer and she has set him up with a good PT and
hand therapist. They also have a great pool for water therapy. Feel free to email me privately and I would be happy to share any other of our experience with you.
This list is a great resource----all of our best education came from here and we've passed it along to Sister Kenny.

All the best,
Mary

Re: desperate for help in Mineapolis/St. Paul, MN

Posted: Sun May 26, 2002 6:47 pm
by admin
I just want to thank all of you who have responded to my post. I can't tell you how much I appreciate it. I have been given some leads and will follow up on them. This place is great - and so supportive. Thanks again. Doreen

Re: desperate for help in Mineapolis/St. Paul, MN

Posted: Mon May 27, 2002 7:39 pm
by admin
Just want to thank all of you who have given me some suggestions. I appreciate it so much - so many kind, caring people on this forum. Doreen

Re: desperate for help in Mineapolis/St. Paul, MN

Posted: Wed May 29, 2002 7:05 pm
by Mindy
Hi! My name is Mindy and I live in Northern MN I have a left TBPI from a car accident over two years ago.
The doctor at Gillettes does not see adults at all. Closest bpi doctor is Mayo Clinic in Rochester if you can get in. They are very pickey about insurance and I was told it would be a six month wait unless an emergency. I have no insurance and could not pay what they wanted so I never went.
My OT tried Sister Kenney but they told her they did not treat this type of injury.
I have never seen a specialist because I financially cannot afford one and it has been too long. If you want to talk e-mail me.
God bless
Mindy