United Brachial Plexus Network, Inc.

My son was born in April 1997 with brachial Palsy due to the use of forceps, he is now 4 going to be 5. His right arm from his wrist to his shoulder, was all blue and he couldn't move it, the only thing he could move was his hands. He had seen a neuroligist once every month, for three months.
The neurologist said she seen improvement and that it wold be a slight difference, and that his right arm was going to be weaker than the left, and the only one's who can tell is him and I.
Since then things have been happening to him like, he was diagnosed with Asthma at 8 months, at 2 years I noticed he was limping on his right leg, and he has to nogles, that the doctors don't know what they are, he has to have speech, and physical thearpy because he's off blanced, and he has had pains in his left arm two times within the past year, when I took him to the doctors, they said it was something called Tortiscollis, which had his left arm paralyzed from his hands to his head and his head was tilting to the left side for two weeks, he couldn't even go to school.
The Dr. said it has nothing to do with the Brachial Palsy, but I'm not so sure. Has anyone else or your child, suffered any of these symptoms, please, please let me know, I would like to hear from you.

Thank you
Nikki

Maia had torticollis early on - it is a tightening of the neck muscles (I think it's primarily because you're not moving your head in that direction too much) but she was recently told that she has it again (in the last 6 months or so). So we try to do neck stretches.

I met with a neonatologist who now works specifically with children with disabilities and she saw a picture of Maia raising her arms and tilting her head. She said that there could be more going on then we think and that we should get her eyes checked out as well. And she also said that it looks like her clavicle was broken. (because of how the head was tilted) I personally don't understand the connection but I'm not a doctor so we're going to make some appointments and get it checked out.

Just wanted to pass that on....

Thank you for responding to my message, I'm with you about not understanding. My grandmom talked to one of her co workers whose a physical thearpist, and she said he called what Aaron had write oft the back, and he said "they let this go on for this long"! Now were seeig a lawyer, and he wants my son to go to Children's hospital, to see a neurologist, to see if there is damage.

If you can please keep me posted, and if you want I will keep you posted, God Bless you and Maia, I will keep you in my prayers.

My son also has torticollis. I was told that many times this couples with bpi because of weakness. Matthew's resolved itself before he had primary surgery. After surgery it seemed to be a little more pronounced when he was tired. He also started to really slouch when sitting. We started seeing a chiropractor/reiki energy therapist and after the first session we saw a lot of improvement. He continues to receive chiropractic care and currently has no visible signs of torticollis.
Cindy

Thomas also had torticollis. You could tell his pretty early own too. We work on it in therapy and after his primary surgery it seem to get better but when he is tierd his head always wants to go to that position. We also went to a chropractor.