United Brachial Plexus Network, Inc.

hello everyone my name is mostafa. i lived with OBPI all my life. when i was growing up there were no doctors her in egypt specialized in BPI. so many doctors have suggested wrong treatments. and when i was 2 years old i had an unsuccessful surgery. and since then my parents saw that the best treatment is physical therapy. although i have benefited alot from physical therapy(good arm strength and growth) my arms motion is limited, which has brought upon me many frustrations throughout my life. recently i started doing some research and i found this forum and i'm so glad i did. for the first time in my life i can tell my story to someone who can really understand. i don't know if some kind of reconstructive surgery will help me at my age but i'm searching. i'm thankful to any one who can help me out and maybe direct me where to look or give me some contact information for good doctors.

Welcome to the boards! It is nice to finally find people who understand. There is hope at any age, I am 20 and just had surgery for mr arm on Wednesday, May 30th. So I am not even a week out yet. I just wnted to point you to the medical resource directory http://ubpn.org/medicalresources/
There you can look under which ever country you want for information on doctors and therapists.

Good luck in finding a doctor!
Amy 20 years old ROBPI from MN

Welcome,Mostafa!! to the UBPN Family. :^) I Just want to add that there are no dumb questions anywhere on any of the Message Forum Boards..and you are welcome to read & post on any of the Forum Boards. I have learn alot since April of 2004 when I found UBPN, and made many friends for Life here too!

Carolyn J
Adult/LOBPI


Message was edited by: Carolyn J

Hello Mostafa , i'm Egyptian also live in Emirates , my son suffer from OBPI also he is 1.5 year now, he had nerve surgery when he was 6 months with the French Doctor Prof. Gilbert, he visits egypt regulary , he is the only one i can trust his opinion in Egypt .My son is improving thx God but still we have long wayyyyy .
You can email prof Gilbert he can help you and you will find his email in the medical resource directory here.If you want more information i'm here.

Hi Mostafa - keep searching and I hope you can be evaluated by a BPI specialist to see what options there are for you. I'm 36, last seen at age 9, and I was surprised to find now that many options are still available to me.

This might not be relevant, but, just today I briefly saw Dr. Hani Matloub, who is from Egypt and works at Medical College of Wisconsin since 1981 (Milwaukee, Wisconsin, USA)