United Brachial Plexus Network, Inc.

OH my goodness...
Boy can I relate to those feelings!

I wish I could help you with this.
All I can do is tell you I understand.
You have a perfect RIGHT to feel this way.
It is OK to have a piety party once in awhile as long as we don't get stuck in it.

I love people who wave both arms as they are telling me I am "lucky" or my injury is not so bad...
As if they have any information or seen someone else with bpi.

All I can do is send you a hug...
Print out that new fact sheet from the SSA to bring with you to SSA.

Hugs to you
Kath (adult/robpi)

I can sooooo understand. Right now I am trying to get our home ready to sell by myself (DH got a new position all the way in MN) while taking care of 5 kids. Took me 6 hours to paint 1 room. I am exhausted, hurting and working everyday trying to get everything done. But everytime I hear from DH's parents it is to ask why I haven't gotten everything done yet. Leaving me frustrated and hurt.

We can have our pity party together:)

I personally like chocolate at my piety party.

My in-laws never lifted a hand to help me.
They also had no problem criticizing me.

You can't change people but you can change your reaction to them.

I feel for you because I am trying to get my house ready to sell to move to a smaller place.
Hopefully one with less work and property to take care of.
I use to love to garden but my hands, arms and back just won't do it anymore.
DH has to go to work so it's all up to me again!
Woman's work is never done!

I once packed to move while I was in labor and had a one year old... LOL...
I actually left for the hospital in the middle of packing a box.I came home from the hospital and finished packing that box... LOL...

I keep telling my DH I packed and unpacked both times we moved and this time he must do his share...
We shall see if that happens...

I hope your taking a break after painting a room.
Five kids seems to me to be enough work without painting and packing...

Kath (robpi/adult)

My Dear BPI-Sisters,
THIS is NOT a Pity Party, BUT just "Life with OBPI" we MUST vent, it is heathy to vent. Did I say "LIfe With OBPI"??!!..LOL...This is your OBPI Mother speaking,LOL!
Also STRESS makes our pain worse. Isn't there a church group or a community volunteer org. that you can ask for help? PLEASE consider asking. I cannot believe, Kamren, that your in-laws don't "get" you & just join in to help! It makes me REALLY mad(oh yea, maybe they don't live close enough??I hope!)

I agree with Kath, CHOCHLATE(sp?)HELPS!..for everything.
Love & Hugs,
Carolyn J

..."Sisters"...
PS..I'm praying for you & Vent all you want!
Love,Hugs & prayers,
Carolyn J
LOBPI,Age 67,..in case you didn't know)..LOL

The venting does help me...a lot! Thank goodness....NO the in-laws are pretty far right now, but we are moving about 4 hours away from them. Thankfully, I have my mother, who listens to me vent and cry all the time over my frustration. Of everyone I know, she is the only one who really knows how hard, and how painful it can be.

Luckily...I also found UBPN.

Kimberly
It's funny that you said your Mother understands.
I stopped talking about my arm and trying to explain my feelings and frustrations once my Mother died.
She died when I was 28 and after that our family never mentioned my arm again.
My mother really understood. I am glad you have your Mom to vent and talk to it helps.
My husband really understood so much more once I found UBPN. He tries very hard to understand and allows me to vent without trying to "fix it for me" now. He just listens and lets me get it out. He also understand my little quirks aka sensory issues much better.
Kath (adult/robpi)

Kath,
That's why I named Ralph "Angel Ralph",b/c he listens and lets you get it out...(just 1 of my reasons..I have more!)
Hugs,
Carolyn J

Bumping up for Christina. I'll find more topics on your question,Christina..."Veggiegoose" Traci is pregnant for the 1st time & we ALL[adults with BPI] chimed in on the topic of fears/relationships/pity-parties we all lived through trying to be "normal" and "fit in". I am sure otherswill chime in too after this busy weekend.Hang in here & there IS NO DUMB QUESTION!!!...keep reading.....
Hugs,
Carolyn J
Adult LOBPI, age 67 & proud of it!

Hey Carolyn,
It's "VEGGIEBUG" and "KISSYGOOSE" are you trying to make me loose my mind....LOL...too late, my son's BPI already made me lose that part....that's okay love him anyways. Have a great weekend, but had to give you a rough time.... HUGS.....Gayle mom to Brandon 7 1/2 ROBPI !